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多发性硬化症患者的就业和有酬工作。

Employment and Gainful Earnings Among Those With Multiple Sclerosis.

机构信息

College of Health Professions, Medical University of South Carolina, Charleston, SC.

College of Health Professions, Medical University of South Carolina, Charleston, SC.

出版信息

Arch Phys Med Rehabil. 2019 May;100(5):931-937.e1. doi: 10.1016/j.apmr.2018.11.005. Epub 2018 Dec 6.

Abstract

OBJECTIVE

To identify demographic, educational, and disease-related characteristics associated with the odds of employment and earnings among participants with multiple sclerosis (MS).

DESIGN

Cross-sectional using self-report assessment obtained by mail or online.

SETTING

Medical university in the southeastern United States.

PARTICIPANTS

Participants with MS (N=1059) were enrolled from a specialty hospital in the southeastern United States. All were adults younger than 65 years at the time of assessment.

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURES

Current employment status and earnings.

RESULTS

MS factors were highly related to employment, yet not as strongly to conditional earnings. Those with no symptoms reported 6.25 greater odds of employment than those with severe current symptoms. Compared with those with progressive MS, those with relapsing or remitting had greater odds of employment (odds ratio [OR]=2.24). Participants with no perceived cognitive impairment had 1.83 greater odds of employment than those with moderate to severe perceived cognitive impairment. Those with <10 years since MS diagnosis had 2.74 greater odds of employment compared with those with >20 years since diagnosis. An absence of problematic fatigue was highly related to the probability of employment (OR=5.01) and higher conditional earnings ($14,454), whereas the remaining MS variables were unrelated to conditional earnings. For non-MS variables, education was highly related to employment status and conditional earnings, because those with a postgraduate degree had 2.87 greater odds of employment and $44,346 greater conditional earnings than those with no more than a high school certificate. Non-Hispanic whites had 2.22 greater odds of employment and $16,118 greater conditional earnings than non-Hispanic blacks, and men reported $30,730 more in conditional earnings than women.

CONCLUSIONS

MS indicators were significantly associated with employment status including time since diagnosis, fatigue, symptom severity, and presence of cognitive impairment. However, among those who were employed, conditional earnings were less highly related to these factors and more highly related to educational attainment.

摘要

目的

确定与多发性硬化症(MS)参与者的就业机会和收入相关的人口统计学、教育和疾病相关特征。

设计

通过邮件或在线的自我报告评估进行的横断面研究。

地点

美国东南部的一所医科大学。

参与者

参与者(N=1059)是从美国东南部的一家专科医院招募的。所有参与者在评估时年龄均在 65 岁以下。

干预措施

不适用。

主要观察指标

当前的就业状况和收入。

结果

MS 因素与就业高度相关,但与条件收入的关系不那么密切。没有症状的人报告说,他们的就业机会比当前有严重症状的人高 6.25 倍。与进展性 MS 相比,复发缓解型 MS 的参与者更有可能就业(优势比[OR]=2.24)。没有感知到认知障碍的参与者比有中度至重度感知认知障碍的参与者更有可能就业(OR=1.83)。MS 诊断后<10 年的参与者比诊断后>20 年的参与者更有可能就业(OR=2.74)。没有明显疲劳的人更有可能就业(OR=5.01),并且有更高的条件收入($14,454),而其余的 MS 变量与条件收入无关。对于非 MS 变量,教育与就业状况和条件收入高度相关,因为拥有研究生学位的人比没有高中以上学历的人更有可能就业(OR=2.87),并且有$44,346 更高的条件收入。非西班牙裔白人比非西班牙裔黑人更有可能就业(OR=2.22),并且有$16,118 更高的条件收入,而男性的条件收入比女性高$30,730。

结论

MS 指标与就业状况显著相关,包括诊断后时间、疲劳、症状严重程度和认知障碍的存在。然而,在那些就业的人中,条件收入与这些因素的关系不太密切,与教育程度的关系更为密切。

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