Hertweck S Paige, Rothstein David H
Norton Children's Hospital, University of Louisville, Louisville, KY.
John R Oishei Hospital, University of Buffalo, Buffalo, NY.
J Pediatr Adolesc Gynecol. 2019 Apr;32(2):103-109. doi: 10.1016/j.jpag.2018.11.007. Epub 2018 Dec 5.
The transition from adolescence to young adulthood in patients with reproductive health care needs such as disorders of sexual development and congenital anomalies is a complex process that occurs over several years. The transition process for these patients is still poorly understood. The patients with disorders of sexual development and reproductive issues have specific and unique issues regarding timing of disclosure of diagnosis, genital examinations, gonadectomy, vaginal treatments, surgical procedures, hormone replacement therapy, use of long-term medication, and potential cancer screening. The purpose of this review is to briefly describe complex genital malformations and their associated anomalies with long-term concerns and then provide an overview of what has been published at this time regarding the transition of care to provide some guidance for providers who care for those patients.
对于有性发育障碍和先天性异常等生殖健康护理需求的患者，从青春期到青年期的过渡是一个复杂的过程，会持续数年。目前对这些患者的过渡过程仍知之甚少。患有性发育障碍和生殖问题的患者在诊断披露时间、生殖器检查、性腺切除术、阴道治疗、外科手术、激素替代疗法、长期药物使用以及潜在的癌症筛查等方面存在特定且独特的问题。本综述的目的是简要描述复杂的生殖器畸形及其相关异常以及长期关注点，然后概述目前已发表的关于护理过渡的内容，为照顾这些患者的医护人员提供一些指导。
