Chulani Veenod L, Gomez-Lobo Veronica, Kielb Stephanie J, Grimsby Gwen M
Department of Pediatrics, Chief of Adolescent Medicine, Phoenix Children's Hospital, Phoenix, AZ, United States.
MedStar Health, Chevy Chase, MD, United States.
Semin Pediatr Surg. 2019 Oct;28(5):150846. doi: 10.1016/j.sempedsurg.2019.150846. Epub 2019 Sep 13.
Children with major congenital anomalies are able to obtain a high level of care in pediatric care settings. In contrast, adult care models emphasize patient responsibility in ensuring their health care needs are met. As patients make this transition, they may fall through the medical "safety net" and struggle to find quality care because of their lack of preparation. Transitional care, including tailored and purposeful medical and social support services, can serve as a bridge across systems and facilitate the safe and effective transfer of young adults with special health care needs from pediatric to adult care. Transitional care prepares youth to manage their own care, effectively use health services, and navigate the shift from distinctly different pediatric to adult models of health care. For unique patient populations such as those with disorders of sexual development and congenital genitourinary conditions, this preparation is vitally important to maximize lifelong functioning and well-being.
患有严重先天性异常的儿童能够在儿科护理环境中获得高水平的护理。相比之下，成人护理模式强调患者在确保其医疗保健需求得到满足方面的责任。随着患者进行这种过渡，他们可能会从医疗“安全网”中掉落，并由于缺乏准备而难以找到高质量的护理。过渡性护理，包括量身定制且有针对性的医疗和社会支持服务，可以作为不同系统之间的桥梁，并促进有特殊医疗保健需求的年轻人从儿科护理安全有效地过渡到成人护理。过渡性护理帮助青少年做好自我护理的准备，有效利用医疗服务，并应对从截然不同的儿科医疗模式到成人医疗模式的转变。对于诸如性发育障碍和先天性泌尿生殖系统疾病等独特患者群体而言，这种准备对于最大限度地提高终身功能和福祉至关重要。
