Brown Perry S, Durham Dixie, Tivis Rick D, Stamper Shannon, Waldren Cleary, Toevs Sarah E, Gordon Barbara, Robb Tiffany A
St. Luke's Cystic Fibrosis Center of Idaho, Boise, ID, United States.
Sam and Aline Skaggs Health Science Center, Idaho State University, Meridian, ID, United States.
Front Public Health. 2018 Nov 26;6:348. doi: 10.3389/fpubh.2018.00348. eCollection 2018.
Advances in the care and treatment of cystic fibrosis (CF) have led to improved mortality rates; therefore, considerably more individuals with CF are living into adulthood. With an increased number of CF patients advancing into adulthood, there is the need for more research that surrounds the aging adult CF patient. It is important to conduct research and collect results on the aging CF population to help better prepare the CF patient, who is dealing with the heavy treatment and financial burden of their disease, build autonomy and increase their quality of life. Of note, research has found that social, behavioral, and physical factors influence the ability of those with CF to follow dietary recommendations. A primary treatment goal in CF is a high calorie, high protein, and high fat diet. A socio-economic factor that has not been adequately investigated with regards to dietary compliance of individuals with CF is food insecurity. The aim of this community case study was to document the experiences and estimate the prevalence of food insecurity among CF patients residing in Idaho. The correlation between food insecurity and health outcomes (lung function and body mass index) was also examined. Participants included adult patients and parents of pediatric patients with CF. Food insecurity rates among CF patients of all ages were found to be significantly higher than that seen in the overall community; however, no specific correlation between food insecurity and body mass index (BMI) or lung function emerged. This case study highlights the need for continued research around food access issues in this patient population. The data resulting from this study shows the value of CF advocacy organizations promoting efforts to build resources and provide education around food insecurity issues.
囊性纤维化（CF）护理和治疗方面的进展已使死亡率有所改善；因此，有更多的CF患者活到成年。随着越来越多的CF患者步入成年，需要开展更多围绕成年CF患者老龄化的研究。对CF老年人群进行研究并收集结果很重要，这有助于更好地帮助CF患者做好准备，他们正应对疾病带来的繁重治疗和经济负担，增强自主性并提高生活质量。值得注意的是，研究发现社会、行为和身体因素会影响CF患者遵循饮食建议的能力。CF的主要治疗目标是高热量、高蛋白和高脂肪饮食。食物不安全是一个在CF患者饮食依从性方面尚未得到充分研究的社会经济因素。本社区案例研究的目的是记录爱达荷州CF患者的经历并估计食物不安全的患病率。还研究了食物不安全与健康结果（肺功能和体重指数）之间的相关性。参与者包括成年CF患者和儿科CF患者的父母。研究发现，所有年龄段CF患者的食物不安全率均显著高于整个社区；然而，食物不安全与体重指数（BMI）或肺功能之间未出现特定相关性。本案例研究强调了对该患者群体食物获取问题持续开展研究的必要性。本研究得出的数据显示了CF倡导组织在促进围绕食物不安全问题建立资源和提供教育方面所做努力的价值。
