UCLA Department of Psychiatry, Semel Institute for Neuroscience and Human Behavior, 300 Medical Plaza, Room 2240, Los Angeles, CA 90095, USA.
UCLA Department of Psychiatry, Semel Institute for Neuroscience and Human Behavior, 300 Medical Plaza, Room 2240, Los Angeles, CA 90095, USA; UCLA Department of Psychology, UCLA, USA.
Schizophr Res. 2018 Dec;202:328-332. doi: 10.1016/j.schres.2018.06.068. Epub 2018 Jul 7.
The goal of this study was to determine if family burden experienced by the families of individuals with a recent-onset of schizophrenia is associated with whether the individual is able to work or attend school during the first year of treatment. Forty-one participants with a recent first episode of schizophrenia and their families enrolled in two NIMH-funded protocols through the UCLA Aftercare Research Program completed a measure of family burden at baseline. Amount of work during this time was also recorded. Baseline family burden was associated with work status (no work, part-time work, or full-time work) at both the six-month, r = -0.321, p = .04, and one-year time point, r = - 0.47, p = .002. Family burden was also associated with hours participated in work/school hours at the six-month time point, r = -0.390, p = .012, and at the one-year time point, r = -0.492, p = .01. Further exploration into the family burden measure shows that family perceived limited opportunities resulting from the individual's psychiatric disorder was associated with worse functional outcome at all three time points beyond psychiatric symptoms and baseline functioning. Missed opportunities due to a family member's illness may reduce the level of support provided to the individual and thus impact their psychosocial functioning. Our findings suggest that this dimension of family burden is highlighting the importance of and need for more balanced family support to boost functional outcome.
本研究旨在确定个体首发精神分裂症后家庭所承受的负担是否与个体在治疗的第一年能否工作或上学有关。41 名首发精神分裂症患者及其家属参加了两项由 UCLA 康复研究计划通过 NIMH 资助的方案,在基线时完成了家庭负担量表的评估。在此期间的工作量也被记录下来。基线家庭负担与六个月时的工作状态(无工作、兼职工作或全职工作)相关,r= -0.321,p=0.04,与一年时的工作状态相关,r= -0.47,p=0.002。家庭负担也与六个月时的工作/上学时间相关,r= -0.390,p=0.012,与一年时的工作/上学时间相关,r= -0.492,p=0.01。进一步探讨家庭负担量表发现,家庭认为个体的精神障碍导致机会有限,与三个时间点的精神病症状和基线功能以外的功能结果更差有关。由于家庭成员患病而错失的机会可能会减少为个体提供的支持水平,从而影响他们的社会心理功能。我们的研究结果表明,家庭负担的这一方面突出了更平衡的家庭支持的重要性和必要性,以提高功能结果。