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小儿特应性皮炎对家庭的影响:综述

The impact of pediatric atopic dermatitis on families: A review.

作者信息

Yang Eric J, Beck Kristen M, Sekhon Sahil, Bhutani Tina, Koo John

机构信息

Department of Dermatology, University of California San Francisco, San Francisco, California.

Chicago Medical School, Rosalind Franklin University of Medicine and Science, North Chicago, Illinois.

出版信息

Pediatr Dermatol. 2019 Jan;36(1):66-71. doi: 10.1111/pde.13727. Epub 2018 Dec 16.

DOI:10.1111/pde.13727
PMID:30556595
Abstract

BACKGROUND

Atopic dermatitis (AD) is an extremely common childhood disease, with considerable impact on the quality of life of affected children and their families. While pruritus is the hallmark symptom of this disease, AD has been well-documented to impact patients beyond physical symptoms, resulting in behavior problems, mood disorders, and sleep disturbance.

OBJECTIVE

This literature review outlines how atopic dermatitis impacts the quality of life of families of children affected by AD.

METHODS

A total of 3436 articles were identified via an online search of the MEDLINE health literature database and were screened for relevance to quality of life impacts on families with children affected by AD.

RESULTS

Caring for children affected by AD can be an extremely time-consuming task that can impair personal relationships, decrease psychosocial functioning, and cause sleep loss among family members of affected patients. Additionally, AD may result in work absence or decreased work productivity for caregivers. Special diets, irritant and allergen avoidance strategies, and alternative therapies are commonly used by patients to manage their disease and require large amounts of family involvement.

CONCLUSIONS

Atopic dermatitis can greatly decrease quality of life of families of affected children in various domains, including sleep, finances, and relationships. Early intervention and psychotherapy may be needed in some patients to address these quality of life impairments.

摘要

背景

特应性皮炎(AD)是一种极其常见的儿童疾病,对患病儿童及其家庭的生活质量有相当大的影响。虽然瘙痒是这种疾病的标志性症状,但AD对患者的影响已被充分证明不仅限于身体症状,还会导致行为问题、情绪障碍和睡眠障碍。

目的

本综述概述了特应性皮炎如何影响患AD儿童家庭的生活质量。

方法

通过在线搜索MEDLINE健康文献数据库共识别出3436篇文章,并筛选其与对患AD儿童家庭生活质量影响的相关性。

结果

照顾患AD的儿童可能是一项极其耗时的任务,会损害人际关系、降低心理社会功能,并导致受影响患者的家庭成员睡眠不足。此外,AD可能导致照顾者缺勤或工作效率下降。患者通常采用特殊饮食、避免刺激物和过敏原策略以及替代疗法来管理疾病,这需要大量家庭参与。

结论

特应性皮炎会在包括睡眠、财务和人际关系等各个方面极大地降低受影响儿童家庭的生活质量。在某些患者中可能需要早期干预和心理治疗来解决这些生活质量受损问题。

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