Federal University of Paraná, Postgraduate program in child and adolescent health, Clinical Hospital Complex of the Federal University of Paraná, 80060-900, General Carneiro, 181, Curitiba, Paraná, Brazil.
Tunis Med. 2024 Sep 5;102(9):582-586. doi: 10.62438/tunismed.v102i9.5072.
Atopic Dermatitis (AD) is the most common skin disease in childhood and its control requires the support of the family members. This disease significantly interferes with the Quality of Life (QoL) of children and families, however, literature on the social and emotional impact of the disease on the caregivers is lacking.
To evaluate the emotional and social impact of AD on mothers of children with the disease.
This is a qualitative study of semi-structured interviews with mothers of children diagnosed with AD. The following variables were evaluated: diagnosis and start of treatment, knowledge about the disease, and impact on the mothers' lives. The material was analyzed using Lawrence Bardin's content analysis technique. The AD severity was assessed by SCORAD.
A total of 23 interviews were conducted with mothers of children diagnosed with AD. In 82.6% of the cases, the mothers presented conflicts in the face of the first contacts with the disease. In 43.5% of cases, mothers were solely responsible for their children's treatment. About 56.6% defined AD as a cause of suffering and difficulty and 21.7% pointed out the AD experience as a learning experience.
The AD is a chronic disease that has a psychological and social impact on the lives of mothers. In the treatment of AD, mothers must be screened and offered psychological support to improve adherence to treatment in the long term.
特应性皮炎（AD）是儿童最常见的皮肤病，其控制需要家庭成员的支持。这种疾病严重影响儿童和家庭的生活质量（QoL），然而，关于疾病对照顾者的社会和情感影响的文献却很少。
评估 AD 对患儿母亲的情绪和社会影响。
这是一项对患有 AD 的儿童的母亲进行半结构化访谈的定性研究。评估了以下变量：诊断和开始治疗、对疾病的了解以及对母亲生活的影响。使用 Lawrence Bardin 的内容分析技术对材料进行分析。AD 的严重程度通过 SCORAD 进行评估。
共对 23 名患有 AD 的儿童的母亲进行了访谈。在 82.6%的情况下，母亲在面对疾病的初次接触时存在冲突。在 43.5%的情况下，母亲独自负责孩子的治疗。约 56.6%的母亲将 AD 定义为痛苦和困难的原因，21.7%的母亲将 AD 经历视为学习经历。
AD 是一种慢性病，对母亲的生活有心理和社会影响。在 AD 的治疗中，必须对母亲进行筛查并提供心理支持，以提高长期治疗的依从性。
