VID Specialized University, Bergen, Norway.
Department of Health and Caring Sciences, Linnaeus University Kalmar, Sweden.
J Clin Nurs. 2019 May;28(9-10):1546-1554. doi: 10.1111/jocn.14751. Epub 2019 Jan 15.
This study aims to describe surgically treated lung cancer patients' experiences of coming home after discharge from hospital to expand the knowledge about their supportive care needs.
Existing research reports that patients suffer from a high symptom burden after lung cancer surgery. Such burden has negative impacts on their physical, emotional and social wellbeing. Few studies have explored the surgically treated patients' supportive care needs after being discharged from hospital.
This study used a qualitative descriptive design, following the EQUATOR guidelines (COREQ).
The information about 14 patients' experiences was collected from semi-structured interviews. The interviews were conducted in their homes within three weeks after their discharge from hospital. The data were analysed using qualitative content analysis.
The main theme of the study, "Longing to get back on track with their lives", consisted of four categories: "Burdened with problems related to postoperative symptoms and treatment", "Struggling for the needed support", "A pendulum between being in need of support and being independent", and "Striving to adapt to a new way of life". The participants experienced many problems related to postoperative symptoms and treatment. Information and support from healthcare professionals were deficient. Life was characterised by striving to be independent and adapting to a new lifestyle.
The findings demonstrate the supportive care needs of surgically treated lung cancer patients. Nurses and other healthcare professionals could offer more individualised support during the first few weeks after the patients' discharge by including them and their caregivers in the discharge planning.
Knowledge of patients' perspectives and experiences of everyday life at home after lung cancer surgery can provide hospital nurses with a better understanding of what is important for such patients beyond hospitalisation. This knowledge should be included in discharge planning.
本研究旨在描述接受肺癌手术后出院回家的患者的经历，以扩展对其支持性护理需求的认识。
现有研究报告称，肺癌手术后患者会遭受高症状负担。这种负担对他们的身体、情感和社会健康都有负面影响。很少有研究探讨过从医院出院后接受肺癌手术治疗的患者的支持性护理需求。
本研究采用了定性描述设计，遵循 EQUATOR 指南（COREQ）。
通过半结构化访谈收集了 14 名患者的经历信息。访谈在他们出院后三周内于家中进行。使用定性内容分析对数据进行分析。
研究的主题是“渴望恢复正常生活”，包括四个类别：“术后症状和治疗相关问题带来的负担”、“为所需支持而奋斗”、“在需要支持和独立之间摇摆不定”、以及“努力适应新生活方式”。参与者经历了许多与术后症状和治疗相关的问题。医护人员提供的信息和支持不足。生活的特点是努力保持独立并适应新的生活方式。
研究结果表明了肺癌手术后患者的支持性护理需求。护士和其他医护人员可以在患者出院后的最初几周内，通过让患者及其照顾者参与出院计划，提供更个性化的支持。
了解肺癌手术后患者在家中日常生活的观点和体验，可以使医院护士更好地理解对这些患者而言，除了住院治疗之外，还有哪些方面是重要的。这些知识应该纳入出院计划中。
