卫生专业人员对结直肠癌患者治疗负担的认知及其减轻负担的支持工作——一项定性研究。
Health professionals' perceptions of colorectal cancer patients' treatment burden and their supportive work to ameliorate the burden - a qualitative study.
机构信息
Department of Gastrointestinal Surgery, Stavanger University Hospital, N-4019, Stavanger, Norway.
Department of Public Health, Faculty of Health Sciences, University of Stavanger, N-4036, Stavanger, Norway.
出版信息
BMC Health Serv Res. 2020 Jul 17;20(1):661. doi: 10.1186/s12913-020-05520-y.
BACKGROUND
Support is pivotal for patients in managing colorectal cancer treatment, as they might be overwhelmed by the burden of treatment. There is scarce knowledge regarding health professionals' perceptions of colorectal cancer patients' burdens and supportive needs. The study aims to describe health professionals' perspectives on treatment burden among patients receiving curative surgical treatment for colorectal cancer during the hospital stay and how they support patients to ameliorate the burden.
METHODS
This study has a descriptive and explorative qualitative design, using semi-structured interviews with nine health professionals recruited from a gastrointestinal-surgery ward at a university hospital in Norway. Data were analysed by using systematic text condensation.
RESULTS
Data analysis identified the themes "capturing patients' burdens of colorectal cancer treatment" and "health professionals' support to ameliorate the burden". Patients with colorectal cancer had to face burdens related to a challenging emotional situation, treatment complications and side effects, and an extensive need for information. A trusting patient-carer relationship was therefore perceived as the essence of health professionals' support. Health professionals focused their support on safeguarding patients, motivating patients to self-manage, and involving family and peers as supporters. Patients' journey characteristics and illness severity challenged health professionals' supportive work.
CONCLUSION
Support from health professionals includes providing patients emotional support and relevant treatment-related information and motivating patients for early post-surgical mobilisation. Health professionals should be aware of identifying colorectal cancer patients' information needs according to the specific treatment stages, which may ameliorate the burden of colorectal cancer treatment and enable patients to self-manage.
背景
支持对于接受结直肠癌治疗的患者至关重要，因为他们可能会因治疗负担而不堪重负。关于卫生专业人员对结直肠癌患者负担和支持需求的看法知之甚少。本研究旨在描述卫生专业人员对接受结直肠癌根治性手术治疗的患者在住院期间治疗负担的看法，以及他们如何支持患者减轻负担。
方法
本研究采用描述性和探索性定性设计，对挪威一所大学医院胃肠外科病房的 9 名卫生专业人员进行了半结构式访谈。使用系统文本浓缩法对数据进行分析。
结果
数据分析确定了两个主题：“捕捉结直肠癌治疗的负担”和“卫生专业人员支持减轻负担”。结直肠癌患者面临与挑战性情绪状况、治疗并发症和副作用以及广泛的信息需求相关的负担。因此，信任的医患关系被认为是卫生专业人员支持的本质。卫生专业人员将支持重点放在保护患者、激励患者自我管理以及让家人和同伴作为支持者上。患者的治疗旅程特征和疾病严重程度挑战了卫生专业人员的支持工作。
结论
卫生专业人员的支持包括为患者提供情感支持和相关的治疗相关信息，并激励患者在手术后早期进行活动。卫生专业人员应该意识到根据特定的治疗阶段识别结直肠癌患者的信息需求，这可以减轻结直肠癌治疗的负担，并使患者能够自我管理。
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