Khanjari Sedighe, Jahanian Sedighe, Haghani Hamid
Nursing Care Research Center, Department of Pediatric Nursing, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.
Department of Pediatric Nursing, Iran University of Medical Sciences, Tehran, Iran.
J Family Med Prim Care. 2018 Sep-Oct;7(5):921-926. doi: 10.4103/jfmpc.jfmpc_176_18.
Nephrotic syndrome is a common nephrology disorder in children that can affect the quality of health of children and adolescents significantly. Training children with nephrotic syndrome with special emphasis on the use of blended training can provide new opportunities for improving the quality of life of these subjects. The present study was conducted in order to investigate the effect of blended training on quality of life in children with nephrotic syndrome.
The present non-randomized clinical trial was carried out, in a time period from January 2012 to June 2013, on 76 children aged 8-12 years with nephrotic syndrome; the subjects were through continuous sampling. The intervention group subjects were selected from the Ali Asghar and Pediatric Medical Centers and the control group subjects were selected from the Mofid Hospital of Tehran. The control group received only previous routine interventions, but the intervention group, in addition to previous routine interventions, received part of the training for nephrotic syndrome. The Pediatric Quality of Life Inventory™ 4.0 (generic core scales) questionnaire was implemented in the present study. Collected data were analyzed by the SPSS 21; -test and paired -test were used to compare the mean scores of the two groups.
There was no significant difference between the two groups in terms of quality of life before intervention; but, the quality of life of the intervention group increased to the control group after intervention (-value < 0.001).
Blended training can improve the quality of life of children with chronic diseases. Therefore, it is recommended to carry out educational intervention for parents of these children in order to increase their coping skills.
肾病综合征是儿童常见的肾脏疾病,会显著影响儿童和青少年的健康质量。对肾病综合征患儿进行训练,特别强调采用混合训练,可为改善这些患儿的生活质量提供新机会。本研究旨在探讨混合训练对肾病综合征患儿生活质量的影响。
本非随机临床试验于2012年1月至2013年6月期间,对76名8 - 12岁的肾病综合征患儿进行;研究对象通过连续抽样选取。干预组患儿从阿里·阿斯加尔儿童医院和儿科医疗中心选取,对照组患儿从德黑兰莫菲德医院选取。对照组仅接受以往的常规干预,但干预组除以往常规干预外,还接受了部分肾病综合征训练。本研究采用了儿童生活质量量表™ 4.0(通用核心量表)问卷。收集的数据采用SPSS 21进行分析;采用t检验和配对t检验比较两组的平均得分。
干预前两组患儿的生活质量无显著差异;但干预后,干预组患儿的生活质量高于对照组(P值<0.001)。
混合训练可提高慢性病患儿的生活质量。因此,建议对这些患儿的家长进行教育干预,以提高他们的应对能力。