Department of Paediatrics and Adolescent Medicine, Tseung Kwan O Hospital, Tseung Kwan O, Kowloon, Hong Kong.
J Adolesc Health. 2010 Dec;47(6):540-6. doi: 10.1016/j.jadohealth.2010.04.002. Epub 2010 Jun 11.
To explore the attitudes of adolescents and parents toward transition care and to identify factors and barriers associated with transition decision.
The study was conducted at a pediatric out-patient clinic using a self-administered questionnaire to evaluate the perspective of adolescent chronic patients on transition care for common chronic diseases. Despite its importance as emphasized in medical literature, transition care for adolescent patients with chronic illnesses is under-developed in Hong Kong.
A total of 137 adolescents aged 16-19 years, and 67 parents completed the survey; 85.3% of adolescents and 82.5% of parents were willing to transfer to adult care. "Adolescent's perception of his/her own responsibility towards chronic illness" was positively associated with willingness to transfer to adult care (OR = 3.84; 95% CI, 1.41-10.45; p = .008), whereas "Detailed explanation by doctors" encouraged transition decision for adolescents (OR = 12.20; 95% CI, 1.22-122.33; p = .033). "Do not want to change" was the only significant barrier for transition for both adolescents (OR = .08; 95% CI, .01-.50; p = .007) and parents (OR = .07; 95% CI, .02-.36; p = .001). However, less than 10% of subjects had ever received any transition information from doctors or other healthcare workers.
This is the first study in Asia region evaluating attitudes of adolescents and parents on transition care. The majority of adolescents and parents accept transition care from pediatrics to adult service, but only a small proportion has ever received transition information from doctors. Our findings should be useful to healthcare providers in planning transition care programmes for adolescent patients with chronic illnesses.
探讨青少年及其家长对过渡护理的态度，并确定与过渡决策相关的因素和障碍。
本研究在一家儿科门诊进行，采用自我管理问卷评估青少年慢性病患者对常见慢性病过渡护理的看法。尽管医学文献强调了过渡护理的重要性，但香港的青少年慢性病患者过渡护理仍不够发达。
共有 137 名 16-19 岁的青少年和 67 名家长完成了调查；85.3%的青少年和 82.5%的家长愿意转至成人护理。“青少年对自身慢性疾病责任的认知”与愿意转至成人护理呈正相关（OR=3.84；95%CI，1.41-10.45；p=0.008），而“医生详细解释”鼓励青少年做出过渡决策（OR=12.20；95%CI，1.22-122.33；p=0.033）。“不想改变”是青少年（OR=0.08；95%CI，0.01-0.50；p=0.007）和家长（OR=0.07；95%CI，0.02-0.36；p=0.001）过渡的唯一显著障碍。然而，只有不到 10%的研究对象曾从医生或其他医护人员处获得过任何过渡信息。
这是亚洲地区首个评估青少年及其家长对过渡护理态度的研究。大多数青少年和家长接受从儿科到成人服务的过渡护理，但只有一小部分曾从医生处获得过过渡信息。我们的研究结果应有助于医疗保健提供者为慢性病青少年患者规划过渡护理计划。
