Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil.
Department of Political Sociology, Universidade Federal de Santa Catarina, Florianópolis, Brazil.
J Geriatr Psychiatry Neurol. 2019 Mar;32(2):59-67. doi: 10.1177/0891988718824039. Epub 2019 Jan 16.
Young-onset Alzheimer disease (YOAD) causes psychological and emotional difficulties for carers. However, even in the face of considerable caregiving demands and burden, some carers are resistant to stress, which may be a sign of resilience. This study investigated whether the clinical symptoms of the person with YOAD might be associated with resilience in their carers. A consecutive series of 43 persons with YOAD and their 43 family caregivers were assessed. The carers showed moderate to high level of resilience, low level of anxiety and depressive symptoms, and moderate level of burden. No relationship was found between resilience and sociodemographic characteristics of both carers and care recipient and with clinical characteristics of persons with YOAD. A linear regression analysis showed that resilience was inversely associated with carers' depressive symptoms. The findings suggest that resilience may mainly be related to carers' mental health.
早发性阿尔茨海默病(YOAD)给照料者带来心理和情绪上的困难。然而,即使面对相当大的照顾需求和负担,一些照料者仍能抵抗压力,这可能是韧性的表现。本研究旨在探讨 YOAD 患者的临床症状是否与照料者的韧性有关。对连续的 43 名 YOAD 患者及其 43 名家庭照料者进行了评估。结果显示,照料者的韧性处于中等至高水平,焦虑和抑郁症状处于低水平,负担处于中等水平。照料者和被照料者的社会人口学特征以及 YOAD 患者的临床特征与韧性之间没有关系。线性回归分析显示,韧性与照料者的抑郁症状呈负相关。研究结果表明,韧性可能主要与照料者的心理健康有关。