Epps Fayron, Rose Karen M, Lopez Ruth Palan
Res Gerontol Nurs. 2019 Jan 1;12(1):20-26. doi: 10.3928/19404921-20181212-04.
The nature and outcome of family caregiving is different for various racial and ethnic groups. The purpose of the current study was to use qualitative methods to examine and characterize family networks of African American family caregivers (N = 26) who provided care to family members with dementia (N = 18). Researchers used data generated from a parent study that addressed family involvement in health promotion activities for African American older adults with dementia. Data were analyzed using sociograms and thematic analysis. Three themes that characterized African American family caregiving networks were identified: (a) Complexity, (b) Familism, and (c) Religiosity. Findings suggest that narrowly defining family caregivers as a dyad of a caregiver and care recipient does not reflect how these family networks function. A better understanding of the complex functioning of these networks may help explain physical and psychological well-being outcomes for individuals with dementia and their family members. [Res Gerontol Nurs. 2019; 12(1):20-26.].
不同种族和族裔群体的家庭照顾性质和结果各不相同。本研究的目的是运用定性方法,对为患有痴呆症的家庭成员提供照顾的非裔美国家庭照顾者(N = 26)的家庭网络进行考察和特征描述,这些家庭成员患有痴呆症(N = 18)。研究人员使用了来自一项母研究的数据,该母研究关注非裔美国老年痴呆症患者家庭参与健康促进活动的情况。数据采用社会关系图和主题分析进行分析。确定了非裔美国家庭照顾网络的三个特征主题:(a)复杂性,(b)家族主义,以及(c)宗教信仰。研究结果表明,将家庭照顾者狭义地定义为照顾者和受照顾者的二元组,并不能反映这些家庭网络的运作方式。更好地理解这些网络的复杂运作,可能有助于解释痴呆症患者及其家庭成员的身心健康结果。[《老年护理研究》。2019年;12(1):20 - 26。]