家庭照顾者的生活质量与为老年痴呆症患者提供的照顾：对照顾者访谈的定性分析。
Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews.
机构信息
Department of Healthcare Studies, the College at Brockport, State University of New York, 350 New Campus Drive, Brockport, NY, 14420, USA.
Department of Social Work, the College at Brockport, State University of New York, 350 New Campus Drive, Brockport, NY, 14420, USA.
出版信息
BMC Geriatr. 2022 Jan 31;22(1):86. doi: 10.1186/s12877-022-02787-0.
BACKGROUND
While studies have examined the quality of life (QoL) of family caregivers for people living with dementia, it is not yet clear how these caregivers' quality of life affects their ability to meet the care demands of their loved ones. The purpose of the study was to explore caregivers' perceived quality of life in relation with the care provided to persons with dementia.
METHODS
Twenty-three caregivers participated in this study. These caregivers participated in focus groups or one-on-one interviews after completing questionnaires regarding their own quality of life as well as the care provided to their loved ones with dementia. The interview and focus group transcripts were analyzed using qualitative description methodology.
RESULTS
Regarding the relationship between caregiver QoL and the care provided to older people with dementia, the following themes were derived: (1) needs of the person with dementia; (2) caregivers' ability to cope with progressing needs of the care recipient; (3) availability and accessibility of support for the caregiver; (4) unmet needs of the caregiver; and (5) ability of the caregiver to meet their own progressing needs as the condition of the care recipient deteriorates.
CONCLUSIONS
Findings from this study suggest that caregiver quality of life is important for the care they provide to their loved ones living with dementia. The study highlights the need for the provision of much needed support for caregivers and older people living with dementia. These issues are particularly important during and post-pandemic.
背景
虽然已经有研究调查了痴呆患者家属照顾者的生活质量（QoL），但目前尚不清楚这些照顾者的生活质量如何影响他们满足亲人护理需求的能力。本研究旨在探讨照顾者的生活质量感知与为痴呆患者提供的护理之间的关系。
方法
23 名照顾者参与了这项研究。这些照顾者在完成了关于自己的生活质量以及为患有痴呆症的亲人提供的护理的问卷后，参加了焦点小组或一对一的访谈。使用定性描述方法对访谈和焦点小组的记录进行了分析。
结果
关于照顾者生活质量与为老年痴呆症患者提供的护理之间的关系，得出了以下主题：（1）痴呆症患者的需求；（2）照顾者应对照顾对象需求不断变化的能力；（3）照顾者的支持的可及性；（4）照顾者的未满足需求；（5）照顾者在护理对象病情恶化时满足自身需求的能力。
结论
本研究的结果表明，照顾者的生活质量对于他们为患有痴呆症的亲人提供的护理至关重要。该研究强调了为照顾者和患有痴呆症的老年人提供急需支持的必要性。这些问题在疫情期间和之后尤为重要。
Zotero 插件