Departments of Speech and Language Therapy, Our Lady's Children's Hospital, Crumlin, Dublin, Ireland.
Departments of Clinical Engineering, Our Lady's Children's Hospital, Crumlin, Dublin, Ireland.
Pediatr Pulmonol. 2019 Apr;54(4):428-435. doi: 10.1002/ppul.24209. Epub 2019 Jan 18.
Tracheostomy is associated with negative effects on voice, speech, and feeding/swallowing. Speaking valves have beneficial effects in these areas but are often contra-indicated in children with airway problems due to high transtracheal pressure (TTP). Valves are modified by drilling to reduce excessive TTP. We hypothesized that a standardized approach to assessment and valve modification by drilling improves valve tolerance and allows widespread successful use.
Following development of a standardized multidisciplinary protocol for patient selection, valve modification and valve prescription at our center, we retrospectively collected information from clinical notes relating to clinical indication and medical history of all children undergoing speaking valve assessment from February 2014 to June 2017. We designed a questionnaire which was delivered to the parents of children receiving both modified and standard valves enquiring about voice, feeding, communication, and suctioning.
Data on 45 children were collected. Thirteen had normal TTP and were given standard valves and 32 had high TTP, all of whom had their valves modified resulting in good tolerance. 17 Children were on positive pressure ventilation at the time of placement. The survey response rate was 83%. Parents report a high degree of satisfaction with modified valves and report positive effects in terms of voice, speech, and feeding/swallowing similar to those reported for standard valves.
Speaking valves can be successfully and safely modified in children, providing valves to many patients previously deemed unsuitable. We report positive parental experiences of these modified valves in line with those reported with standard valves.
气管切开术会对声音、言语和进食/吞咽产生负面影响。说话阀在这些方面有有益的影响,但由于经气管压力(TTP)过高,在有气道问题的儿童中通常被视为禁忌。可以通过钻孔来修改阀门以降低过高的 TTP。我们假设通过评估和钻孔来修改标准化的方法可以提高阀门耐受性并允许广泛成功使用。
在我们中心制定了用于患者选择、阀门修改和阀门处方的标准化多学科方案之后,我们回顾性地从临床记录中收集了 2014 年 2 月至 2017 年 6 月期间所有接受说话阀评估的儿童的临床指征和病史信息。我们设计了一份问卷,该问卷被送到接受改良和标准阀门的儿童的父母手中,询问他们关于声音、喂养、沟通和抽吸的问题。
共收集了 45 名儿童的数据。13 名儿童 TTP 正常,给予标准阀门,32 名儿童 TTP 过高,所有这些儿童的阀门均经修改后耐受性良好。17 名儿童在放置时接受正压通气。调查的回复率为 83%。父母报告对改良阀门非常满意,并报告在声音、言语和进食/吞咽方面有积极影响,与标准阀门报告的影响相似。
可以安全有效地为儿童修改说话阀,为许多以前认为不合适的患者提供阀门。我们报告了这些改良阀门的积极的父母体验,与标准阀门报告的体验一致。