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土耳其癌症患儿父母的情绪和应对方法。

Emotions and coping methods of Turkish parents of children with cancer.

机构信息

a Department of Pediatric Nursing, Faculty of Health Sciences , Inonu University , Malatya , Turkey.

b Department of Surgical Nursing, Faculty of Health Sciences , Inonu University , Malatya , Turkey.

出版信息

J Psychosoc Oncol. 2019 May-Jun;37(3):398-412. doi: 10.1080/07347332.2018.1555197. Epub 2019 Jan 22.

Abstract

OBJECTIVE

This hermeneutic phenomenological study was conducted with the aim to determine the emotions and coping methods of Turkish parents whose children were diagnosed with cancer.

METHODS

Data were collected through in-person, in-depth interviews with 12 parents (8 mothers, 4 fathers). The semi-structured interview form was developed based on Elisabeth Kübler-Ross's model of the five stages of grief (denial, anger, bargaining, depression and acceptance) with the addition of questions on coping methods. Data interpretation proceeded through three phases: superficial reading, structural analysis and comprehensive understanding.

RESULTS

All the parents made statements indicating their devastation while expressing their feelings at the moment they learned of the diagnosis. After overcoming the first shock, most thought it was a false diagnosis, and some thought it was a test from God. The parents were angry mostly with the doctors, themselves, their spouses and God. All the parents participating in the study stated that they had regrets about the past. Most engaged in more emotion-oriented and fewer problem-focused coping efforts. However, some parents used negative coping methods.

CONCLUSION

These parents need help from healthcare professionals to come to terms with their grief.

摘要

目的

本解释现象学研究旨在确定被诊断患有癌症的土耳其儿童的父母的情绪和应对方式。

方法

通过对 12 名父母(8 名母亲,4 名父亲)进行面对面的深入访谈收集数据。半结构化访谈形式是基于伊丽莎白·库伯勒-罗斯的悲伤五阶段模型(否认、愤怒、讨价还价、抑郁和接受)制定的,并增加了应对方式的问题。数据解释分三个阶段进行:浅层阅读、结构分析和全面理解。

结果

所有父母在得知诊断结果时都表达了自己的崩溃,并发表了陈述。在克服最初的震惊后,大多数人认为这是一个错误的诊断,有些人认为这是上帝的考验。父母们大多对医生、自己、配偶和上帝感到愤怒。所有参与研究的父母都表示对过去感到遗憾。大多数人采用了更多以情绪为导向的应对方式,而较少采用以问题为导向的应对方式。然而,一些父母采用了消极的应对方式。

结论

这些父母需要医护人员的帮助来接受他们的悲痛。

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