Faith Melissa A, Mayes Sunnye, Pratt Chelsea D, Carter Carrick
Johns Hopkins All Children's Hospital, St. Petersburg, FL, USA; University of Texas Southwestern Medical Center, Dallas, TX, USA.
University of Oklahoma Health Sciences Center, Oklahoma City, OK, USA.
J Pediatr Nurs. 2019 Jan-Feb;44:56-62. doi: 10.1016/j.pedn.2018.10.016. Epub 2018 Nov 1.
This study evaluated changes in hope, attitude toward illness, and perceptions of illness benefit and burden following participation in a summer camp designed for youth with a variety of chronic illnesses. Participants were 62 youth campers (Age M = 13.45 years, SD = 2.41) with a variety of chronic illnesses. For youth who began camp low in hope about future goal attainment, participation in optional camp activities negatively predicted post-camp hope about future goal attainment. This relation was nonsignificant for campers who began camp high in hope. We found no significant changes in attitude toward illness or perceptions of illness benefit or burden. This study provides an important contribution to burgeoning research on summer camps designed for children with varying chronic illnesses. Findings were inconsistent with previous studies on chronic illness summer camp outcomes. Further work is needed to identify camp components that are related to desirable psychosocial outcomes for youth with chronic illnesses.
本研究评估了参加一个为患有各种慢性病的青少年设计的夏令营后,希望、对疾病的态度以及对疾病益处和负担的认知的变化。参与者为62名患有各种慢性病的青少年营员(年龄M = 13.45岁,标准差 = 2.41)。对于那些开营时对未来目标实现的希望较低的青少年,参与可选的营地活动对营后对未来目标实现的希望有负面预测作用。对于开营时希望较高的营员,这种关系不显著。我们发现对疾病的态度或对疾病益处或负担的认知没有显著变化。本研究为针对患有不同慢性病的儿童设计的夏令营的新兴研究做出了重要贡献。研究结果与之前关于慢性病夏令营成果的研究不一致。需要进一步开展工作,以确定与慢性病青少年理想的心理社会成果相关的营地组成部分。