Lee Eon Sook, Suh Sang-Yeon, LeBlanc Thomas W, Himchack Sang Hwa, Lee Sanghee Shiny, Kim Yoonjoo, Ahn Hong-Yup
1 Department of Family Medicine, Ilsan-Paik Hospital, College of Medicine, Inje University, Goyang, Korea.
2 Department of Family Medicine, Dongguk University Ilsan Hospital, Goyang, South Korea.
Am J Hosp Palliat Care. 2019 Jun;36(6):500-506. doi: 10.1177/1049909118824542. Epub 2019 Jan 27.
Prognostication is an essential component of palliative care for patients with advanced cancer but also poses challenges. Little is known about physicians' perspectives on prognostication and prognostic tools used in palliative care practice in Eastern countries.
To explore Korean physicians' perspectives and experiences with prognostication in their palliative care practices.
Semi-structured interviews were conducted in Korea in 11 palliative care physicians. A constant comparative and grounded theory approach was used to derive themes from interview transcripts.
Participants on average had 6.4 (SD = 4.5, range 0.5-15) years of hospice and palliative care experience. We identified 4 main themes about prognostication: (1) the importance of prognostication (to help patients and their families prepare for death, to determine the appropriate time of transition to hospice care, to facilitate appropriate decision making, and to facilitate communication with patients and their families); (2) difficulties of prognostication (discomfort estimating the exact date of death); (3) basis of prognostication (clinical prediction of survival as well as prognostic scores); and (4) areas for further research (need for a simpler scoring system or parameters to predict survival with greater certainty).
Palliative care physicians in Korea reported similar perceptions about the role and challenges inherent in prognostication compared to clinicians in Western cultures. However, they emphasize the need to predict final days to keep families with dying patients, reflecting family-centered aspects of Asian culture. They reported frustrations with inaccurate prognostication schemas and called for the development of simpler, more accurate predictors as a focus of future research.
预后评估是晚期癌症患者姑息治疗的重要组成部分,但也带来了挑战。对于东方国家姑息治疗实践中医生对预后评估及其所使用的预后工具的看法,我们知之甚少。
探讨韩国医生在姑息治疗实践中对预后评估的看法和经验。
在韩国对11名姑息治疗医生进行了半结构化访谈。采用持续比较和扎根理论方法从访谈记录中提炼主题。
参与者平均有6.4年(标准差 = 4.5,范围0.5 - 15年)的临终关怀和姑息治疗经验。我们确定了关于预后评估的4个主要主题:(1)预后评估的重要性(帮助患者及其家人为死亡做准备、确定转至临终关怀的合适时间、促进恰当的决策制定以及促进与患者及其家人的沟通);(2)预后评估的困难(对准确估计死亡日期感到不适);(3)预后评估的依据(生存的临床预测以及预后评分);(4)进一步研究的领域(需要更简单的评分系统或参数以更确定地预测生存)。
与西方文化中的临床医生相比,韩国的姑息治疗医生对预后评估所固有的作用和挑战有着相似的看法。然而,他们强调需要预测患者的最后日子,以便让家人陪伴临终患者,这反映了亚洲文化以家庭为中心的特点。他们对不准确的预后评估模式表示不满,并呼吁开发更简单、更准确的预测指标作为未来研究的重点。