Hallen Sarah A M, Hootsmans Norbert A M, Blaisdell Laura, Gutheil Caitlin M, Han Paul K J
Geriatric Medicine, Maine Medical Center, Portland, ME, USA.
Center for Outcomes Research and Evaluation, Maine Medical Center Research Institute, Portland, ME, USA.
Health Expect. 2015 Dec;18(6):2266-77. doi: 10.1111/hex.12196. Epub 2014 May 12.
The communication of prognosis in end-of-life (EOL) care is a challenging task that is limited by prognostic uncertainty and physicians' lack of confidence in their prognostic estimates. Clinical prediction models (CPMs) are increasingly common evidence-based tools that may mitigate these problems and facilitate the communication and use of prognostic information in EOL care; however, little is known about physicians' perceptions of the value of these tools.
To explore physicians' perceptions of the value of CPMs in EOL care.
Qualitative study using semi-structured individual interviews which were analysed using a constant comparative method.
Convenience sample of 17 attending physicians representing five different medical specialties at a single large tertiary care medical centre.
Physicians perceived CPMs as having three main benefits in EOL care: (i) enhancing their prognostic confidence; (ii) increasing their prognostic authority; and (iii) enabling patient persuasion in circumstances of low prognostic and therapeutic uncertainty. However, physicians also perceived CPMs as having potential risks, which include producing emotional distress in patients and promoting prognostic overconfidence in EOL care.
Physicians perceive CPMs as a potentially valuable means of increasing their prognostic confidence, communication and explicit use of prognostic information in EOL care. However, physicians' perceptions of CPMs also indicate a need to establish broad and consistent implementation processes to engage patients in shared decision making in EOL care, to effectively communicate uncertainty in prognostic information and to help both patients and physicians manage uncertainty in EOL care decisions.
临终关怀中的预后沟通是一项具有挑战性的任务,受到预后不确定性以及医生对其预后估计缺乏信心的限制。临床预测模型(CPMs)是越来越常见的循证工具,可能会缓解这些问题,并促进临终关怀中预后信息的沟通与使用;然而,对于医生对这些工具价值的看法知之甚少。
探讨医生对临床预测模型在临终关怀中价值的看法。
采用半结构化个人访谈的定性研究,并使用持续比较法进行分析。
在一家大型三级医疗中心,从代表五个不同医学专业的17名主治医生中选取的便利样本。
医生认为临床预测模型在临终关怀中有三个主要益处:(i)增强他们的预后信心;(ii)增加他们的预后权威性;(iii)在预后和治疗不确定性较低的情况下能够说服患者。然而,医生也认为临床预测模型存在潜在风险,包括给患者带来情绪困扰以及在临终关怀中促进预后过度自信。
医生认为临床预测模型是一种潜在有价值的手段,可增强他们在临终关怀中对预后信息的信心、沟通及明确使用。然而,医生对临床预测模型的看法也表明,需要建立广泛且一致的实施流程,让患者参与临终关怀中的共同决策,有效沟通预后信息中的不确定性,并帮助患者和医生应对临终关怀决策中的不确定性。