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对于居住在集体之家的智障人士而言,影响他们获取和持续使用辅助产品的因素是否存在差异?

Are there differences in factors influencing access and continued use of assistive products for people with intellectual disabilities living in group homes?

作者信息

Boot Fleur Heleen, MacLachlan Malcolm, Dinsmore John

机构信息

Assisting Living & Learning (ALL) Institute, Maynooth University, Maynooth, Ireland.

Centre for Global Health, Trinity College Dublin, Dublin, Ireland.

出版信息

Disabil Rehabil Assist Technol. 2020 Feb;15(2):173-182. doi: 10.1080/17483107.2018.1550116. Epub 2019 Jan 28.

Abstract

The World Health Organization has launched a program to promote Global Cooperation on Assistive Technology (GATE) to implement those parts of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) referring to assistive technology and products. A particular vulnerable group deeply affected by health inequity affecting access to assistive products are people with intellectual disabilities. The objective of this study is to understand the barriers and facilitators to effectively access and continuously use essential assistive products for people with intellectual disabilities. Face-to-face interviews with 15 adults with a mild to profound intellectual disability and 15 providers of assistive products were conducted to gain insights about current use, needs, knowledge, awareness, access, customization, funding, follow-up, social inclusion, stigma and policies around assistive products and intellectual disability. The technique of constant comparative analysis was used to analyze the data. An overview of factors is presented that fit within seven domains for access and eight domains for continuous use of assistive products for people with intellectual disabilities. It illustrates that access and continuous use are influenced by different barriers and facilitators. These different influences should be taken into account in country policies and frameworks that seek to implement the UNCRPD through assistive technology.Implications for rehabilitationProactive assessment for assistive products by health professionals is rare and the vast majority of people with intellectual disabilities depend on carers to signal the need .A lack of education for carers around available assistive products and the benefits of assistive products for people with intellectual disabilities may lead to an underutilization for this group.The paternalistic attitude of care providers towards people with intellectual disabilities limits access and use to certain (high-tech) assistive products.The segmented and disjointed aspect of public funding to support assistive products found in this study is a key issue for policymakers who aspire to adhere to implementing the UNCRPD equally in all areas of their country.

摘要

世界卫生组织发起了一项促进全球辅助技术合作(GATE)的计划,以实施《联合国残疾人权利公约》(UNCRPD)中涉及辅助技术和产品的部分内容。智障人士是受影响健康公平从而影响辅助产品获取的一个特别弱势群体。本研究的目的是了解智障人士有效获取和持续使用基本辅助产品的障碍和促进因素。对15名轻度至重度智障成年人和15名辅助产品供应商进行了面对面访谈,以深入了解辅助产品与智障相关的当前使用情况、需求、知识、认知、获取、定制、资金、后续跟进、社会融入、耻辱感及政策。采用持续比较分析法对数据进行分析。概述了适合智障人士获取辅助产品的七个领域和持续使用辅助产品的八个领域的因素。结果表明,获取和持续使用受到不同障碍和促进因素的影响。在试图通过辅助技术实施《联合国残疾人权利公约》的国家政策和框架中,应考虑这些不同影响。

对康复的启示

卫生专业人员对辅助产品的主动评估很少见,绝大多数智障人士依赖护理人员发出需求信号。护理人员对现有辅助产品以及辅助产品对智障人士益处的教育不足,可能导致该群体对辅助产品利用不足。护理提供者对智障人士的家长式态度限制了对某些(高科技)辅助产品的获取和使用。本研究中发现的公共资金支持辅助产品的分散和脱节问题,是希望在本国所有领域平等实施《联合国残疾人权利公约》的政策制定者面临的一个关键问题。

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