Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
University of Groningen, University Medical Center Groningen, Center for Rehabilitation, Groningen, The Netherlands.
Spinal Cord. 2019 May;57(5):396-403. doi: 10.1038/s41393-018-0237-1. Epub 2019 Jan 28.
Cross-sectional survey OBJECTIVES: To describe computer and Internet use (other than for work or study) among people with long-standing spinal cord injury (SCI), examine associations between demographic and lesion characteristics and Internet use, and examine associations between Internet use and mental health, participation, and life satisfaction.
Community, The Netherlands METHODS: Participants were 265 individuals living with SCI for at least 10 years, who were 18-35 at the onset of SCI, aged 28-65 at the time of the study and wheelchair-user. Scales for General and Health-related Internet use were developed.
Nearly all (97.7%) participants had Internet access and 98.4% of those used it daily or weekly. Of those with tetraplegia, 47.4% had assistive devices for computer use. General Internet use, such as following news and online banking, was very frequent. Websites with information on general health or accessibility were typically visited a few times a year. Three-quarters never visited websites of other individuals with SCI or foreign websites with information on SCI. General Internet use was associated with male gender, younger age, and higher education. Participants with tetraplegia scored higher on Health-related Internet use compared to participants with paraplegia. Health-related Internet use was associated with worse participation, but not with the other psychosocial variables.
Internet has become part of daily life of people with SCI in the Netherlands. However, only one association between Internet use and indicators of psychosocial functioning was found. Possible underuse of adaptive devices and of SCI-specific websites warrant further investigation.
横断面调查
描述长期脊髓损伤（SCI）患者的计算机和互联网使用情况（不包括工作或学习用途），探讨人口统计学和损伤特征与互联网使用之间的关系，并研究互联网使用与心理健康、参与度和生活满意度之间的关系。
社区，荷兰
参与者为 265 名患有 SCI 至少 10 年的个体，他们在 SCI 发病时年龄在 18-35 岁之间，在研究时年龄在 28-65 岁之间且为轮椅使用者。开发了一般和与健康相关的互联网使用量表。
几乎所有（97.7%）参与者都可以上网，其中 98.4%的人每天或每周上网。在四肢瘫痪者中，有 47.4%的人使用计算机辅助设备。一般互联网使用，如关注新闻和在线银行，非常频繁。每年通常会访问几次提供一般健康或无障碍信息的网站。四分之三的人从未访问过其他 SCI 患者的网站或提供 SCI 信息的国外网站。一般互联网使用与男性性别、年轻年龄和高等教育程度相关。四肢瘫痪患者的健康相关互联网使用得分高于截瘫患者。健康相关互联网使用与较差的参与度相关，但与其他社会心理变量无关。
互联网已成为荷兰 SCI 患者日常生活的一部分。然而，仅发现互联网使用与社会心理功能指标之间存在一个关联。需要进一步调查自适应设备和 SCI 特定网站的使用不足情况。
