Murdoch Children's Research Institute, Royal Children's Hospital, Department of Paediatrics, University of Melbourne, Parkville, Victoria, Australia.
Department of Nutrition, Dietetics and Food, Monash University, Melbourne, Victoria, Australia.
Nutr Diet. 2019 Jul;76(3):263-270. doi: 10.1111/1747-0080.12516. Epub 2019 Jan 28.
Personal genomic testing for nutrition and wellness (PGT-NG) offers a new service delivery model to nutritionists and dietitians. However, research indicates that this type of testing currently lacks sufficient clinical validity and utility to be commercially available. Despite Australian guidelines to the contrary, healthcare professionals are currently offering testing to clients, and promoting these services online. Thus, it is important to understand how PGT-NG is currently framed online to the public.
A mixed methods content analysis was conducted to assess the content, quality and marketing approaches of websites offering PGT-NG to Australians. Websites were identified using popular search engines to mimic the behaviour of a consumer. A novel framework was developed for the purposes of the analysis.
Thirty-nine websites were analysed, comprising four nutritional genomic testing company websites and 35 healthcare provider websites. Healthcare providers relied on information from the testing companies. The content was emotive, and little attention was given to the scientific and ethical aspects of personal genomic testing. Websites appealed to consumer empowerment and framed testing as an essential and superior tool for optimising health.
Websites lacked the transparency necessary for informed consent. A basic checklist of key information was developed to aid healthcare providers when informing potential clients of PGT-NG online.
营养与健康的个人基因组检测（PGT-NG）为营养师和营养学家提供了一种新的服务提供模式。然而，研究表明，这种类型的检测目前缺乏足够的临床有效性和实用性，无法在商业上使用。尽管澳大利亚的指南与之相反，但医疗保健专业人员目前正在向客户提供检测，并在网上推广这些服务。因此，了解 PGT-NG 目前在网上向公众的呈现方式非常重要。
采用混合方法内容分析法评估向澳大利亚人提供 PGT-NG 的网站的内容、质量和营销方法。使用流行的搜索引擎来识别网站，以模拟消费者的行为。为分析目的开发了一个新的框架。
分析了 39 个网站，包括 4 个营养基因组检测公司网站和 35 个医疗保健提供商网站。医疗保健提供者依赖于检测公司的信息。内容是情绪化的，几乎没有关注个人基因组检测的科学和伦理方面。网站呼吁消费者赋权，并将检测作为优化健康的必要和优越工具。
网站缺乏知情同意所需的透明度。开发了一个基本的关键信息检查表，以帮助医疗保健提供者在网上向潜在客户告知 PGT-NG。
