Gotto George S, Reynolds Michelle C, Palmer Susan B, Chiang Danielle F
George S. Gotto and Michelle C. Reynolds, University of Missouri at Kansas City - Institute for Human Development; Susan B. Palmer, Beach Center on Disability, KUCDD; and Danielle F. Chiang , University of Missouri at Kansas City - Institute for Human Development.
Intellect Dev Disabil. 2019 Feb;57(1):56-65. doi: 10.1352/1934-9556-57.1.56.
Supporting families who have family members with intellectual and developmental disabilities (IDD) as they move through life is a critical need ( Reynolds, Palmer, & Gotto, 2018 ). The phrase, supporting families, juxtaposes the typical family support paradigm in response to the ongoing shrinkage of federal and state dollars and the recognition that parents and caregivers need services and supports to support their family member with IDD at home ( Amado, Stancliffe, McCarron, & McCallion, 2013 ). Within the family support movement, families are defined in the broadest terms, including those living in the same household, people who are affiliated by birth or choice, and others in the role of helping individuals with IDD succeed in life ( Reynolds et al., 2015 ; Turnbull, Turnbull, Erwin, Soodak, & Shogren, 2015 ).
在家庭成员患有智力和发育障碍（IDD）的家庭度过人生历程时给予支持是一项迫切需求（雷诺兹、帕尔默和戈托，2018年）。“支持家庭”这一表述与典型的家庭支持模式形成对比，这是由于联邦和州资金持续缩减，以及认识到父母和照料者需要服务与支持以便在家中照料其患有IDD的家庭成员（阿马多、斯坦克利夫、麦卡伦和麦卡利恩，2013年）。在家庭支持运动中，家庭的定义最为宽泛，包括居住在同一家庭的成员、有血缘关系或因选择而关联的人，以及其他帮助患有IDD的个体在生活中取得成功的人（雷诺兹等人，2015年；特恩布尔、特恩布尔、欧文、苏达克和肖格伦，2015年）。
