1 Serious Illness Care Program, Ariadne Labs, Brigham and Women's Hospital, Harvard T.H. Chan School of Public Health, Boston, Massachusetts.
2 Department of Pulmonary Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.
J Palliat Med. 2019 Jul;22(7):773-781. doi: 10.1089/jpm.2018.0487. Epub 2019 Feb 6.
Conversations with seriously ill patients about their values and goals have been associated with reduced distress, a better quality of life, and goal-concordant care near the end of life. Yet, little is known about how such conversations are conducted. To characterize the content of serious illness conversations and identify opportunities for improvement. Qualitative analysis of audio-recorded, serious illness conversations using an evidence-based guide and obtained through a cluster randomized controlled trial in an outpatient oncology setting. Clinicians assigned to the intervention arm received training to use the "Serious Illness Conversation Guide" to have a serious illness conversation about values and goals with advanced cancer patients. Conversations were de-identified, transcribed verbatim, and independently coded by two researchers. Key themes were analyzed. A total of 25 conversations conducted by 16 clinicians were evaluated. The median conversation duration was 14 minutes (range 4-37), with clinicians speaking half of the time. Thematic analyses demonstrated five key themes: (1) supportive dialogue between patients and clinicians; (2) patients' openness to discuss emotionally challenging topics; (3) patients' willingness to articulate preferences regarding life-sustaining treatments; (4) clinicians' difficulty in responding to emotional or ambiguous patient statements; and (5) challenges in discussing prognosis. Data from this exploratory study suggest that seriously ill patients are open to discussing values and goals with their clinician. Yet, clinicians may struggle when disclosing a time-based prognosis and in responding to patients' emotions. Such skills should be a focus for additional training for clinicians caring for seriously ill patients.
与重病患者就其价值观和目标进行对话已被证明可以减轻其痛苦、提高生活质量,并使其在生命末期得到与目标一致的关怀。然而,我们对于此类对话的具体开展方式仍知之甚少。本研究旨在描述严重疾病对话的内容,并确定其改进的机会。这是一项在门诊肿瘤环境中进行的基于群组随机对照试验,对使用基于证据的指南记录的严重疾病对话进行定性分析。将临床医生随机分配到干预组,他们接受了使用“严重疾病对话指南”与晚期癌症患者就价值观和目标进行严重疾病对话的培训。这些对话是匿名的,逐字转录,并由两位研究人员独立进行编码。分析了关键主题。评估了 16 位临床医生进行的 25 次对话。每次对话的平均持续时间为 14 分钟(范围为 4-37 分钟),临床医生的发言时间占一半。主题分析显示了五个关键主题:(1)患者和临床医生之间的支持性对话;(2)患者愿意讨论情感上具有挑战性的话题;(3)患者愿意表达对维持生命治疗的偏好;(4)临床医生难以回应患者的情绪或模糊陈述;(5)讨论预后的挑战。这项探索性研究的数据表明,重病患者愿意与他们的临床医生讨论价值观和目标。然而,临床医生在透露基于时间的预后和回应患者的情绪时可能会感到困难。这些技能应成为对照顾重病患者的临床医生进行额外培训的重点。