a Department of Psychology , University of Otago , Dunedin , New Zealand.
b Department of Medicine, Dunedin School of Medicine , University of Otago , Dunedin , New Zealand.
Psychol Health. 2019 Feb;34(2):181-199. doi: 10.1080/08870446.2018.1520232. Epub 2019 Feb 8.
The aim of this study was to understand the perspectives of people with rheumatic disease have about completing a pilot daily diary questionnaire on fatigue and well-being, with the objective of incorporating these perspectives into future daily studies.
Twenty-two participants with experience of rheumatic disease-related fatigue attended a focus group and/or an individual interview. Before the focus group or interview, participants completed a one-off quantitative diary about their fatigue and well-being that day. In the focus groups and interviews, participants were asked about their experience completing the questionnaire. Data were analysed using inductive thematic analysis.
Three themes were identified. 'Concerns about Misinterpretation and Ambiguity' addressed the elements of the diary questionnaire that were confusing or unclear to participants. 'Desire to Provide Useful and Accurate Information' outlined participants' uncertainty about how to report complex daily experiences. 'Gaining Personal Insight through Diaries' revealed the personal benefits participants gained, particularly the development of insight into their fatigue.
People with rheumatic disease are willing to complete a daily diary questionnaire, but emphasise it is important for diary questionnaires to have clear instructions, questionnaire items and response scales. Addressing these concerns will ensure the reliability and validity of quantitative diary data.
本研究旨在了解风湿性疾病患者对完成疲劳和幸福感预试验每日日记问卷的看法，以便将这些观点纳入未来的日常研究中。
22 名有风湿性疾病相关疲劳经历的参与者参加了焦点小组和/或个人访谈。在焦点小组或访谈之前，参与者完成了当天关于疲劳和幸福感的一次性定量日记。在焦点小组和访谈中，参与者被问及他们完成问卷的经验。使用归纳主题分析对数据进行分析。
确定了三个主题。“对误解和歧义的担忧”涉及到日记问卷中令参与者感到困惑或不清楚的部分。“渴望提供有用和准确的信息”概述了参与者对如何报告复杂的日常经历的不确定性。“通过日记获得个人洞察力”揭示了参与者获得的个人益处，特别是对疲劳的深入了解。
风湿性疾病患者愿意完成每日日记问卷，但强调日记问卷必须有明确的说明、问卷项目和反应量表。解决这些问题将确保定量日记数据的可靠性和有效性。
