Centre for Rare Diseases, Institute for Translational Medicine, University Hospitals Birmingham, Birmingham, UK.
Centre for Rare Diseases, Institute for Translational Medicine, University Hospitals Birmingham, Birmingham, UK.
Lancet Gastroenterol Hepatol. 2019 Mar;4(3):248-254. doi: 10.1016/S2468-1253(18)30244-9.
Increasing numbers of children are surviving into adulthood with a diagnosis of liver disease or having undergone liver transplantation. This population presents some challenges for the adult hepatologist, and a formal transition service clearly improves outcomes for patients in this group. Evidence of ongoing neurological development in young people up to the age of 25 years exists, and understanding these physiological processes is important in overcoming some of the challenges that caring for this population presents. A well designed transition service is key to maximising potential for these patients, and should enable young people to take control of their illness and achieve their life goals.
越来越多的儿童被诊断患有肝脏疾病或接受过肝脏移植,从而存活到成年。这一人群给成人肝病专家带来了一些挑战,而正式的过渡服务显然可以改善这一群体患者的预后。有证据表明,年轻人的神经系统在 25 岁之前仍在持续发育,了解这些生理过程对于克服这一人群护理所带来的一些挑战非常重要。精心设计的过渡服务是充分发挥这些患者潜力的关键,应该使年轻人能够控制自己的疾病并实现自己的人生目标。