Department of Public Health, Faculty of Health Sciences, Ben-Gurion University of the Negev, Be'er Sheva, Israel.
Department of Family Medicine, Faculty of Health Sciences, Ben-Gurion University of the Negev, Be'er Sheva, Israel.
Aging Ment Health. 2020 Apr;24(4):575-581. doi: 10.1080/13607863.2019.1570080. Epub 2019 Feb 12.
The diverse demands of cancer care, which require time, psychological, physical, and material resources, often lead to caregiver burden. Studies with caregivers from ethnic minority groups suggest that they have unique beliefs and may experience different perceptions of role demands and caregiving. The aim of this study was to identify direct and indirect predictors of burden among Bedouin caregivers of family members with terminal cancer in Israel. A total of 101 Bedouin family caregivers of terminal cancer patients participated in this study. Participants were recruited from the oncology department of the largest medical center in southern Israel. The questionnaire battery included the Arabic version of the Zarit Burden Interview and other reliable measures validated for cancer caregiving. We performed path analyses on data allowing us to identify hypothesized, and un-hypothesized predictors of burden in this understudied population. Most caregivers were adult children, followed by spouses, siblings and other family members. In our model, caregiver burden was directly predicted by depressive symptoms and (absence of) social support. Burden was indirectly predicted by quality of life (via depressive symptoms), optimism (via social support), emotional exhaustion (via quality of life and depressive symptoms) and mortality communication (via emotional exhaustion, quality of life and depressive symptoms). Social support and depression are the most important factors among all studied measures. Culturally-tailored intervention programs are required to foster community care and mitigate burden for Bedouin and other ethnic minority groups in Israel.
癌症护理的需求多种多样，需要时间、心理、身体和物质资源，这往往会导致照顾者负担过重。对少数族裔群体的照顾者的研究表明，他们有独特的信仰，可能对角色需求和照顾有不同的看法。本研究旨在确定以色列贝多因族临终癌症患者家属照顾者负担的直接和间接预测因素。共有 101 名贝多因族临终癌症患者的家庭照顾者参与了这项研究。参与者是从以色列南部最大医疗中心的肿瘤内科招募的。问卷包括阿拉伯语版的 Zarit 负担访谈和其他经过验证的癌症护理可靠措施。我们对数据进行了路径分析，以确定在这一研究不足的人群中，假设和非假设的负担预测因素。大多数照顾者是成年子女，其次是配偶、兄弟姐妹和其他家庭成员。在我们的模型中，照顾者的负担直接由抑郁症状和（缺乏）社会支持来预测。负担还可以通过生活质量（通过抑郁症状）、乐观（通过社会支持）、情绪疲惫（通过生活质量和抑郁症状）和死亡沟通（通过情绪疲惫、生活质量和抑郁症状）间接预测。在所有研究的措施中，社会支持和抑郁是最重要的因素。需要制定文化上适当的干预计划，以促进社区护理，并减轻以色列的贝多因族和其他少数族裔群体的负担。
