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本文引用的文献

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Reach and Adoption of a Randomized Weight Loss Maintenance Trial in Rural African Americans of Faith: The WORD (Wholeness, Oneness, Righteousness, Deliverance).农村非洲裔美国信徒参与随机减肥维持试验的情况和结果:WORD(完整、统一、正义、拯救)。
Am J Health Promot. 2019 May;33(4):549-557. doi: 10.1177/0890117118805065. Epub 2018 Oct 11.
2
Applying a community-based participatory research framework to patient and family engagement in the development of patient-centered outcomes research and practice.将基于社区的参与式研究框架应用于患者和家属参与以患者为中心的结局研究和实践的发展。
Transl Behav Med. 2018 Sep 8;8(5):683-691. doi: 10.1093/tbm/ibx026.
3
Design of a comparative effectiveness randomized controlled trial testing a faith-based Diabetes Prevention Program (WORD DPP) vs. a Pacific culturally adapted Diabetes Prevention Program (PILI DPP) for Marshallese in the United States.一项比较有效性随机对照试验的设计,该试验旨在测试针对美国马绍尔群岛人的基于信仰的糖尿病预防计划(WORD DPP)与太平洋文化适应性糖尿病预防计划(PILI DPP)。
Medicine (Baltimore). 2018 May;97(19):e0677. doi: 10.1097/MD.0000000000010677.
4
Design of a randomized, controlled, comparative-effectiveness trial testing a Family Model of Diabetes Self-Management Education (DSME) vs. Standard DSME for Marshallese in the United States.一项随机对照比较有效性试验的设计,该试验测试针对美国马绍尔群岛人的糖尿病自我管理教育家庭模式与标准糖尿病自我管理教育模式。
Contemp Clin Trials Commun. 2017 Mar 29;6:97-104. doi: 10.1016/j.conctc.2017.03.007. eCollection 2017 Jun.
5
Diabetes and Hypertension in Marshallese Adults: Results from Faith-Based Health Screenings.美拉尼西亚人成年人中的糖尿病和高血压:基于信仰的健康筛查结果。
J Racial Ethn Health Disparities. 2017 Dec;4(6):1042-1050. doi: 10.1007/s40615-016-0308-y. Epub 2016 Nov 11.
6
Immigrants as Research Partners: A Review of Immigrants in Community-Based Participatory Research (CBPR).移民作为研究伙伴:基于社区的参与式研究(CBPR)中的移民综述
J Immigr Minor Health. 2017 Dec;19(6):1457-1468. doi: 10.1007/s10903-016-0474-3.
7
Health Beliefs of Marshallese Regarding Type 2 Diabetes.马绍尔人对2型糖尿病的健康认知
Am J Health Behav. 2016 Mar;40(2):248-57. doi: 10.5993/AJHB.40.2.10.
8
A review of diabetes prevention program translations: use of cultural adaptation and implementation research.糖尿病预防项目翻译综述:文化适应与实施研究的应用
Transl Behav Med. 2015 Dec;5(4):401-14. doi: 10.1007/s13142-015-0341-0. Epub 2015 Sep 16.
9
Community-Driven Research Agenda to Reduce Health Disparities.减少健康差距的社区驱动研究议程
Clin Transl Sci. 2015 Dec;8(6):690-5. doi: 10.1111/cts.12350. Epub 2015 Nov 17.
10
Effect of US health policies on health care access for Marshallese migrants.美国卫生政策对马绍尔群岛移民获得医疗保健服务的影响。
Am J Public Health. 2015 Apr;105(4):637-43. doi: 10.2105/AJPH.2014.302452. Epub 2015 Feb 25.

利益相关者参与如何影响一项随机对照有效性试验,该试验在马绍尔群岛太平洋岛民社区测试两种糖尿病预防计划干预措施。

How stakeholder engagement influenced a randomized comparative effectiveness trial testing two Diabetes Prevention Program interventions in a Marshallese Pacific Islander Community.

机构信息

University of Arkansas for Medical Sciences, Northwest Campus, 1125 North College Ave, Fayetteville, AR, 72703, USA.

Florida International University, 11200 SW 8th St., AMHC5-463, Miami, FL, 33199, USA.

出版信息

J Transl Med. 2019 Feb 11;17(1):42. doi: 10.1186/s12967-019-1793-7.

DOI:10.1186/s12967-019-1793-7
PMID:30744647
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6371527/
Abstract

BACKGROUND

Marshallese face significant health disparities, with particularly high rates of type 2 diabetes. Engaging stakeholders in the research process is essential to reduce health inequities.

METHODS

A community- and patient-engaged research approach was used to involve community Marshallese stakeholders in a randomized comparative effectiveness trial testing two Diabetes Prevention Program interventions.

RESULTS

The article outlines the engagement process and the specific influence that stakeholders had on the research planning and implementation, discussing the areas of agreement and disagreement between community and patient stakeholders and academic investigators and documenting changes to the research protocol.

CONCLUSION

The article provides an example of methods that can be used to design and conduct a randomized controlled trial testing with a population who has been underrepresented in research and suffered significant historical trauma.

摘要

背景

马绍尔群岛人面临着严重的健康差距,尤其是 2 型糖尿病的发病率极高。让利益相关者参与研究过程对于减少健康不平等至关重要。

方法

采用社区和患者参与的研究方法,让社区马绍尔群岛利益相关者参与一项随机对照效果试验,测试两种糖尿病预防计划干预措施。

结果

本文概述了参与过程以及利益相关者对研究计划和实施的具体影响,讨论了社区和患者利益相关者与学术研究人员之间的共识和分歧领域,并记录了对研究方案的修改。

结论

本文提供了一种方法的例子,可以用来设计和进行一项针对在研究中代表性不足且遭受严重历史创伤的人群的随机对照试验。