饮食失调青少年及其父母的护理经历：定性研究
Care experiences of young people with eating disorders and their parents: qualitative study.
作者信息
Mitrofan Oana, Petkova Hristina, Janssens Astrid, Kelly Jonathan, Edwards Eve, Nicholls Dasha, McNicholas Fiona, Simic Mima, Eisler Ivan, Ford Tamsin, Byford Sarah
机构信息
Academic Clinical Lecturer in Child and Adolescent Psychiatry,University of Exeter College of Medicine and Health,University of Exeter,UK.
Health Economist, King's Health Economics, Institute of Psychiatry, Psychology and Neuroscience,King's College London,UK.
出版信息
BJPsych Open. 2019 Jan;5(1):e6. doi: 10.1192/bjo.2018.78.
BACKGROUND
Perspectives of young people with eating disorders and their parents on helpful aspects of care should be incorporated into evidence-based practice and service design, but data are limited.AimsTo explore patient and parent perspectives on positive and negative aspects of care for young people with eating disorders.
METHOD
Six online focus groups with 19 young people aged 16-25 years with existing or past eating disorders and 11 parents.
RESULTS
Thematic analysis identified three key themes: the need to (a) shift from a weight-focused to a more holistic, individualised and consistent care approach, with a better balance in targeting psychological and physical problems from an early stage; (b) improve professionals' knowledge and attitude towards patients and their families at all levels of care from primary to 'truly specialist'; (c) enhance peer and family support.
CONCLUSIONS
Young people and parents identified an array of limitations in approaches to care for young people with eating disorders and raised the need for change, particularly a move away from a primarily weight-focused treatment and a stronger emphasis on psychological needs and individualised care.Declaration of interestNone.
背景
饮食失调的年轻人及其父母对护理有益方面的看法应纳入循证实践和服务设计中，但相关数据有限。
目的
探讨患者和父母对饮食失调青少年护理的积极和消极方面的看法。
方法
对19名年龄在16 - 25岁、患有现存或既往饮食失调症的年轻人以及11名父母进行了6次在线焦点小组访谈。
结果
主题分析确定了三个关键主题：需要（a）从以体重为重点转向更全面、个性化和一致的护理方法，在早期更好地平衡针对心理和身体问题；（b）提高从初级护理到“真正专科”护理各级专业人员对患者及其家庭的知识和态度；（c）加强同伴和家庭支持。
结论
年轻人和父母指出了饮食失调青少年护理方法中的一系列局限性，并提出了变革的必要性，特别是要摆脱主要以体重为重点的治疗方法，更加强调心理需求和个性化护理。
利益声明
无。
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