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适应困境的生活——慢性阻塞性肺疾病患者在康复过程中的自我形象体验和认知。

Accommodating to a troubled life - chronic obstructive pulmonary disease patients' experiences and perceptions of self-image during the course of rehabilitation.

机构信息

Institute of Regional Health University of Southern Denmark, Odense, Denmark.

Department of Physiotherapy and Occupational Therapy, Slagelse Hospital, Slagelse, Denmark.

出版信息

Disabil Rehabil. 2020 Aug;42(17):2510-2518. doi: 10.1080/09638288.2018.1563641. Epub 2019 Feb 14.

Abstract

To tailor future rehabilitation programmes for patients with chronic pulmonary obstructive disease, there is a need for more in-depth knowledge about what is essential to these patients and how they perceive their self-image while participating in rehabilitation. Therefore, this study aims to explore patients' experiences and perception of self-image during pulmonary rehabilitation. Twenty-one patients were followed by participant observations during standard rehabilitation complicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis and interpretation were applied. Through a rewarding peer fellowship, patients became engaged in rehabilitation and improved their capacity to embrace and manage their illness. Through a humorous interplay, encouragement to live with the life-threating disease developed. While understanding themselves in a wider perspective, patients enhanced enablement to shape life according to personal satisfaction. Although participating in the group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressful overload. More individualized support from healthcare professionals was warrented. Group-based pulmonary rehabilitation can support chronic pulmonary obstructive disease patients towards significant change in self-image and health behaviour, leading to improved illness management. Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essential to the participants might expand the rehabilitation yields.

摘要

为了为慢性阻塞性肺疾病患者量身定制未来的康复计划,我们需要更深入地了解对这些患者至关重要的因素,以及他们在参与康复时如何感知自己的形象。因此,本研究旨在探讨患者在肺康复过程中的体验和自我形象感知。通过对 21 名患者进行随访观察,他们在标准康复治疗的基础上接受了补充的个体访谈。采用了现象学-解释学分析和解释方法。通过有益的同伴交往,患者参与了康复并提高了他们接受和管理疾病的能力。通过幽默的互动,鼓励他们与威胁生命的疾病共存。在更广泛的视角下理解自己,患者增强了根据个人满意度塑造生活的能力。虽然参与基于小组的方案大多是令人振奋的,但有时也会被视为压力过大。需要有更多的来自医疗保健专业人员的个性化支持。基于小组的肺康复可以帮助慢性阻塞性肺疾病患者显著改变自我形象和健康行为,从而改善疾病管理。扩大从同伴交往中受益的机会,并更加关注对参与者至关重要的因素,可能会扩大康复效果。

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