Institute of Nursing and Health promotion, Oslo Metropolitan University, Oslo, Norway.
Regional Advisory Unit for Palliative Care, Division of Cancer Medicine, Oslo University Hospital, Oslo, Norway.
J Clin Nurs. 2021 May;30(9-10):1479-1488. doi: 10.1111/jocn.15700. Epub 2021 Feb 26.
To investigate experiences that contribute to enhancing patients' ability to cope with COPD during interdisciplinary in-hospital pulmonary rehabilitation programmes.
Patients with COPD often experience difficulties accepting their life situation as well as reduced levels of activity and social interaction. Despite the large body of research conducted on interdisciplinary collaboration and coping, few studies have examined patient perspectives of why and how pulmonary rehabilitation actually contributes to helping patients with COPD to cope with their illness.
Qualitative design.
The data consist of qualitative focus group interviews with 17 participants, divided into three focus groups. The data were analysed using a thematic analysis approach. The Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist was used.
The patients described a lack of knowledge and understanding of their illness. In addition, they felt that their illness imposed limitations on their lifestyle and social interaction. Support from healthcare professionals during pulmonary rehabilitation proved to be vital, yet the lectures and consultations they received were described as general and sometimes rushed. The patients reported a positive effect from undergoing pulmonary rehabilitation, but a loss of motivation after returning home.
The findings indicate that gaining better health competence during pulmonary rehabilitation contributes to enhancing patients' coping ability. Moreover, patients found it valuable to meet people in a comparable situation and to feel respected by healthcare professionals. Nevertheless, taking an individual empowerment-oriented approach and focusing on the return home seem to be significant aspects of the patients' improved and lasting ability to cope after pulmonary rehabilitation.
Patients with COPD should be offered pulmonary rehabilitation because it has proven to have a positive effect on coping ability. Different follow-up measures are vital after pulmonary rehabilitation to maintain motivation after returning home.
调查在跨学科住院肺康复计划中，有助于增强患者应对 COPD 能力的经验。
COPD 患者经常面临接受生活状况以及活动和社交互动减少的困难。尽管已经进行了大量关于跨学科合作和应对的研究，但很少有研究探讨患者对肺康复如何以及为什么有助于帮助 COPD 患者应对疾病的看法。
定性设计。
数据包括对 17 名参与者进行的定性焦点小组访谈，分为三个焦点小组。使用主题分析方法对数据进行分析。使用了定性研究报告的统一标准（COREQ）检查表。
患者描述了缺乏对疾病的了解和理解。此外，他们觉得自己的疾病限制了他们的生活方式和社交互动。肺康复期间来自医疗保健专业人员的支持被证明是至关重要的，但他们所接受的讲座和咨询被描述为一般，有时还很匆忙。患者报告说肺康复有积极的效果，但回家后动力会下降。
研究结果表明，在肺康复期间获得更好的健康能力有助于增强患者的应对能力。此外，患者发现与处于类似情况的人见面并得到医疗保健专业人员的尊重是有价值的。然而，采取个体赋权为导向的方法并关注回家后阶段似乎是患者在肺康复后提高和持久应对能力的重要方面。
应该为 COPD 患者提供肺康复，因为它已被证明对应对能力有积极影响。肺康复后采取不同的随访措施对于维持回家后的动力至关重要。
