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围产期姑息治疗中的同情与社群:通过叙事例证理解患者视角的必要性

Compassion and Community in Perinatal Palliative Care: Understanding the Necessity of the Patient Perspective Through Narrative Illustration.

作者信息

Kuchemba-Hunter Jennifer

机构信息

1 Loyola University Chicago, Chicago, IL, USA.

出版信息

J Palliat Care. 2019 Jul;34(3):160-163. doi: 10.1177/0825859719827020. Epub 2019 Feb 18.

Abstract

Advancing technology in reproductive medicine has led to more frequent perinatal diagnoses of fatal or life-limiting anomaly. For those parents who choose to continue pregnancies while facing such a diagnosis, compassionate and communal perinatal palliative care provides beneficial physical and psycho-socio-emotional support for these families, so that they may preserve and acknowledge the relationship with their child, no matter how brief his/her life.

摘要

生殖医学技术的进步导致围产期对致命或危及生命的异常情况的诊断更加频繁。对于那些在面临此类诊断时选择继续妊娠的父母来说,富有同情心和社会支持的围产期姑息治疗为这些家庭提供了有益的身体和心理社会情感支持,使他们能够维护并承认与孩子的关系,无论其生命多么短暂。

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