Tataj-Puzyna Urszula, Heland-Kurzak Krystyna, Sys Dorota, Szlendak Beata, Ryś Maria, Krauze Magdalena, Baranowska Barbara
Department of Midwifery, Centre of Postgraduate Medical Education, 01-004 Warsaw, Poland.
Department of Social Pedagogy, The Maria Grzegorzewska University, 02-353 Warsaw, Poland.
Healthcare (Basel). 2023 May 25;11(11):1540. doi: 10.3390/healthcare11111540.
Providing care to a woman after a Life-Limiting Fetal Conditions (LLFC) diagnosis is a difficult experience for midwives. This study's aim is to describe the experience of midwives assisting in births following an LLFC diagnosis. It is a qualitative study using Interpretative Phenomenological Analysis (IPA). Semi-structured in-depth interviews were conducted with 15 midwives with experience in caring for women giving birth following an LLFC diagnosis. The data was analyzed through coding using the MAXQDA tool. The main theme emerging from the experience of midwives concerned difficulty in interacting with the woman giving birth. The analysis singled out four subthemes containing the most significant issues arising from the experience of midwives in caring for a woman giving birth to a lethally ill child: in relation with the woman giving birth; in relation with the child and the family; in relation with oneself; and in relation with the workplace. Midwives should have access not only to solid knowledge about this question, but also to courses developing skills in dealing with difficult situations, in coping with stress, in expressing compassion and, most importantly, in communicating with women and their families in such difficult circumstances.
对助产士来说,在诊断出胎儿患有危及生命的疾病(LLFC)后为产妇提供护理是一段艰难的经历。本研究的目的是描述助产士在诊断出LLFC后协助分娩的经历。这是一项采用诠释现象学分析(IPA)的定性研究。对15名有助产经验的助产士进行了半结构化深度访谈,这些助产士在护理被诊断出LLFC后分娩的产妇方面有经验。使用MAXQDA工具通过编码对数据进行分析。助产士经历中出现的主要主题是与分娩产妇互动困难。分析确定了四个子主题,包含了助产士在护理患有致命疾病婴儿的产妇过程中出现的最重要问题:与分娩产妇的关系;与孩子和家庭的关系;与自身的关系;与工作场所的关系。助产士不仅应该掌握关于这个问题的扎实知识,还应该参加培养应对困难情况、应对压力、表达同情心,以及最重要的是在这种困难情况下与产妇及其家人沟通技能的课程。