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社交媒体、电子健康与医学伦理

Social Media, E-Health, and Medical Ethics.

出版信息

Hastings Cent Rep. 2019 Jan;49(1):24-33. doi: 10.1002/hast.975.

DOI:10.1002/hast.975
PMID:30790306
Abstract

Given the profound influence of social media and emerging evidence of its effects on human behavior and health, bioethicists have an important role to play in the development of professional standards of conduct for health professionals using social media and in the design of online systems themselves. In short, social media is a bioethics issue that has serious implications for medical practice, research, and public health. Here, we inventory several ethical issues across four areas at the intersection of social media and health: the impact of social networking sites on the doctor-patient relationship, the development of e-health platforms to deliver care, the use of online data and algorithms to inform health research, and the broader public health consequences of widespread social media use. In doing so, we review discussions of these topics and emphasize the need for bioethics to focus more deeply on the ways online technology platforms are designed and implemented. We argue that bioethicists should turn their attention to the ways in which consumer engagement, bias, and profit maximization shape online content and, consequently, human behavior and health. We also offer a set of recommendations and suggest future directions for addressing ethical challenges in these domains.

摘要

鉴于社交媒体的深远影响,以及越来越多的证据表明其对人类行为和健康的影响,生物伦理学家在制定使用社交媒体的卫生专业人员的行为专业标准以及设计在线系统本身方面发挥着重要作用。简而言之,社交媒体是一个具有严重医疗实践、研究和公共卫生影响的生物伦理学问题。在这里,我们在社交媒体与健康交叉的四个领域列出了几个伦理问题:社交网站对医患关系的影响、开发电子健康平台提供护理、利用在线数据和算法为健康研究提供信息,以及广泛使用社交媒体的更广泛的公共卫生后果。在这样做的过程中,我们回顾了对这些主题的讨论,并强调需要生物伦理学更深入地关注在线技术平台的设计和实施方式。我们认为,生物伦理学家应该将注意力转向消费者参与、偏见和利润最大化塑造在线内容,以及由此影响人类行为和健康的方式。我们还提出了一系列建议,并为解决这些领域的伦理挑战提出了未来的方向。

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