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[阿尔茨海默病与非正式照料者的生活质量]

[Alzheimer's disease and the quality of life of the informal caregiver].

作者信息

Casal Rodríguez Bruno, Rivera Castiñeira Berta, Currais Nunes Luis

机构信息

Facultad de Economía y Empresa, Universidad de A Coruña, A Coruña, España.

Facultad de Economía y Empresa, Universidad de A Coruña, A Coruña, España.

出版信息

Rev Esp Geriatr Gerontol. 2019 Mar-Apr;54(2):81-87. doi: 10.1016/j.regg.2018.10.008. Epub 2019 Feb 18.

DOI:10.1016/j.regg.2018.10.008
PMID:30792138
Abstract

BACKGROUND

Along with an ageing population, a higher incidence of chronic diseases leads to increasingly complex health profiles. The relationship between survival, dependence, and social and demographic trends affecting caregiving, has led to an increase in the negative consequences associated with care provision. In this context, an assessment needs to be made on the impact that caregiving has on the well-being of the caregivers. The main aim of this article is to study the factors that determine the Quality of Life (QoL) of those who provide informal care to people suffering from Alzheimer's disease (AD).

METHODS

A total of 175 caregivers of people with AD were recruited through the Galician Association for Relatives with Alzheimer. These caregivers completed a questionnaire (EQ-5D) that gathered sociodemographic and health variables, QoL, and care characteristics. Multiple regression models were calculated to explain the QoL of the caregivers.

RESULTS

Of the five dimensions that the EQ-5D used to describe health, anxiety/depression was the one that concerned the largest percentage of caregivers who declared the highest levels of severity. The key variables for explaining QoL are those related to caregiver health status, periods of rest during caregiving, and the presence of a second caregiver.

CONCLUSIONS

Maintaining a minimal QoL among the caregivers not only has repercussions on the caregivers themselves, but also has an impact on those receiving care and the entire health system, which would have to find replacements for those informal caregivers.

摘要

背景

随着人口老龄化,慢性病发病率上升导致健康状况日益复杂。生存、依赖以及影响照护的社会和人口趋势之间的关系,使得与照护相关的负面后果不断增加。在这种背景下,需要评估照护对照护者幸福感的影响。本文的主要目的是研究决定为阿尔茨海默病(AD)患者提供非正式照护者生活质量(QoL)的因素。

方法

通过加利西亚老年痴呆症亲属协会招募了175名AD患者的照护者。这些照护者完成了一份问卷(EQ-5D),该问卷收集了社会人口学和健康变量、生活质量以及照护特征。计算多元回归模型以解释照护者的生活质量。

结果

在EQ-5D用于描述健康的五个维度中,焦虑/抑郁是涉及宣称严重程度最高的照护者比例最大的维度。解释生活质量的关键变量是与照护者健康状况、照护期间的休息时间以及是否有第二位照护者有关的变量。

结论

维持照护者的最低生活质量不仅会对照护者自身产生影响,还会对接受照护者以及整个卫生系统产生影响,卫生系统将不得不寻找替代这些非正式照护者的人员。

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