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将患者置于中心位置:日常健康实践中的患者赋权。

Putting patients into the centre: Patient empowerment in everyday health practices.

机构信息

University of Southern Denmark, Denmark.

出版信息

Health (London). 2020 Nov;24(6):625-645. doi: 10.1177/1363459319831343. Epub 2019 Feb 28.

Abstract

Patient empowerment is a key topic in public health, medical sociology and in public debates on the modernisation of healthcare. This article joins the on-going discussion on public and patient involvement by offering a patient-centred perspective on patient empowerment outside the usual institutionalised context of chronic disease management. We present results from a qualitative study on individuals' practices of dealing with acute non-life-threatening medical conditions conducted from 2012 to 2017 in Denmark. Based on 34 home visits including in-depth interviews and participant observations with a sample of 28 informants, we uncover a spectrum of four patient tactics governing these practices: delegating, informing, consuming and resisting. The findings suggest disruptive changes to the role of the patient-physician relationship as well as the existence of practices indicative of patient empowerment outside the context of patient empowerment initiatives. Some patients are found to take over responsibility for their health, employing tactics where the role of general practitioners is severely demoted. These empirical contributions lead to the two theoretical contributions of the article: an extension of an existing model of patient empowerment and a conceptual reconsideration of patient empowerment, advocating viewing it as emerging from a bricolage of tactical interactions with social environments rather than as the consequence of an external strategic process.

摘要

患者赋权是公共卫生、医学社会学以及医疗保健现代化公共辩论中的一个关键议题。本文通过提供一种以患者为中心的视角,加入了关于公众和患者参与的持续讨论,这种视角超越了慢性病管理中常见的制度化背景。我们展示了 2012 年至 2017 年在丹麦进行的一项关于个体处理急性非危及生命的医疗状况的实践的定性研究的结果,该研究共进行了 34 次家访,包括对 28 名受访者的深入访谈和参与观察。我们揭示了四种管理这些实践的患者策略:委托、告知、消费和抵制。研究结果表明,患者与医生关系的角色发生了颠覆性的变化,并且存在一些迹象表明,在患者赋权举措之外,也存在患者赋权的实践。一些患者发现自己对自己的健康负责,采取了一些策略,严重削弱了全科医生的作用。这些经验性的贡献导致了本文的两个理论贡献:对现有患者赋权模型的扩展,以及对患者赋权的概念性重新思考,主张将其视为与社会环境的策略性互动的组合,而不是外部战略过程的结果。

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