Albrecht Tara A, Keim-Malpass Jessica, Boyiadzis Michael, Rosenzweig Margaret
Tara A. Albrecht, PhD, ACNP-BC, is assistant professor and Susan White Holsworth Palliative Care scholar, Division of Hematology, Oncology and Palliative Care and Massey Cancer Center, School of Medicine, Virginia Commonwealth University, Richmond. Jessica Keim-Malpass, PhD, RN, is assistant professor, School of Nursing, University of Virginia, Charlottesville. Michael Boyiadzis, MD, MHSc, is associate professor, director, Clinical and Translational Research Programs, Division of Hematology/Oncology, Department of Medicine, University of Pittsburgh, Pennsylvania. Margaret Rosenzweig, PhD, CRNP-C, AOCNP, FAAN, is professor, Department of Acute/Tertiary Care, School of Nursing, University of Pittsburgh, Pittsburgh, Pennsylvania.
J Hosp Palliat Nurs. 2019 Apr;21(2):167-173. doi: 10.1097/NJH.0000000000000545.
The diagnosis of cancer for anyone is a time of fear and uncertainty. For young adults (YAs) diagnosed with acute leukemia (AL), there are the additional challenges related to lengthy aggressive in-hospital treatment, multiple concurrent symptoms, and decreased well-being. The purpose of this study was to explore the experiences of YAs with AL undergoing induction chemotherapy. This study used a nested qualitative longitudinal design with a convenience sample. Qualitative data were collected using semistructured interviews, and participants were invited to maintain journals. The semistructured interviews were audiotaped, transcribed, and loaded into Atlas.ti for analysis. Common themes and categories were verified and used to disseminate the findings. Seven YAs, mean age 32 (SD, 4) years, participated in this study. Three thematic classifications emerged: getting through, supported yet isolated, and information exchange preferences, which detail how these YAs processed and coped during treatment. The findings from this study provide important insights for nurses regarding coping mechanisms that YAs apply, which included relying on technology and social media platforms. Additionally, the YAs in this study discussed their need for information. The findings from this study may provide insights for clinicians currently caring for YAs with AL, while also directing future palliative care research endeavors.
对任何人来说，癌症的诊断都是一个充满恐惧和不确定性的时期。对于被诊断为急性白血病（AL）的年轻人（YAs）来说，还面临着与长时间的积极住院治疗、多种并发症状以及幸福感下降相关的额外挑战。本研究的目的是探讨接受诱导化疗的急性白血病年轻患者的经历。本研究采用了嵌套式定性纵向设计，并使用了便利样本。通过半结构化访谈收集定性数据，并邀请参与者撰写日记。半结构化访谈进行了录音、转录，并加载到Atlas.ti软件中进行分析。验证了共同的主题和类别，并用于传播研究结果。七名平均年龄为32岁（标准差为4岁）的年轻患者参与了本研究。出现了三个主题分类：挺过去、虽得到支持但仍感孤立、信息交流偏好，这些分类详细描述了这些年轻患者在治疗过程中的处理和应对方式。本研究的结果为护士提供了关于年轻患者所采用应对机制的重要见解，这些机制包括依赖技术和社交媒体平台。此外，本研究中的年轻患者讨论了他们对信息的需求。本研究的结果可能为目前照顾急性白血病年轻患者的临床医生提供见解，同时也为未来的姑息治疗研究工作提供指导。
