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脑死亡者家属器官捐献心理层面测量工具

Tools for the Measurement of Psychological Aspects of Organ Donation among the Families of Brain-dead People.

作者信息

Ahmadian S, Khaghanizadeh M, Zarghami M H, Khaleghi E, Ebadi A

机构信息

Faculty of Nursing, Baqiyatallah University of Medical Sciences, Tehran, Iran.

Behavioral Sciences Research Center, Baqiyatallah University of Medical Sciences, Tehran, Iran.

出版信息

Int J Organ Transplant Med. 2018;9(2):53-67. Epub 2018 May 1.

PMID:30834089
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6390983/
Abstract

BACKGROUND

According to the basic ethical principle of non-maleficence, organ procurement systems need to be accountable to donor families. As organ donation can be potentially traumatic, donor families are at risk of developing psychological damage. Appropriate measurement tools are needed to diagnose such disorders and develop appropriate treatment measures.

OBJECTIVE

To examine the appropriateness of measurement tools and approaches used in previous studies for assessing donor families' psychological well-being.

METHODS

A structured online search was conducted in electronic databases namely and . The main inclusion criterion was the use of psychological assessment tools for data collection.

RESULTS

10 studies were included in which different tools had been used for measuring donor families' psychological well-being in the following 5 dimensions: stress, depression, grief, general health, and positive legacy of trauma. The major pitfalls of the reviewed studies were failure to specifically assess complicated grief and differentiating it from other psychological disorders, diversity of the tools used for psychological well-being assessment, and lack of clear definitions of donor families' psychological well-being and its dimensions.

CONCLUSION

Donor families' psychological well-being is a complex and multidimensional concept and the existing measurement tools cannot accurately assess it. Therefore, the concept needs to be clearly explored and defined. Developing a comprehensive measurement tool or a set of scales is necessary for the early diagnosis of any impairment in donor families' psychological well-being.

摘要

背景

根据不伤害的基本伦理原则,器官获取系统需要对捐赠者家属负责。由于器官捐赠可能具有潜在的创伤性,捐赠者家属有遭受心理伤害的风险。需要合适的测量工具来诊断此类障碍并制定适当的治疗措施。

目的

检验先前研究中用于评估捐赠者家属心理健康的测量工具和方法的适用性。

方法

在电子数据库[具体数据库名称未给出]中进行了结构化在线搜索。主要纳入标准是使用心理评估工具进行数据收集。

结果

纳入了10项研究,这些研究使用了不同工具在以下5个维度测量捐赠者家属的心理健康:压力、抑郁、悲伤、总体健康和创伤的积极遗产。所审查研究的主要缺陷包括未能专门评估复杂性悲伤并将其与其他心理障碍区分开来、用于心理健康评估的工具多样,以及对捐赠者家属心理健康及其维度缺乏明确的定义。

结论

捐赠者家属的心理健康是一个复杂的多维度概念,现有的测量工具无法准确评估它。因此,需要对这一概念进行清晰的探索和定义。开发一种全面的测量工具或一套量表对于早期诊断捐赠者家属心理健康的任何损害是必要的。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f417/6390983/612e8c96bc08/ijotm-9-053-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f417/6390983/612e8c96bc08/ijotm-9-053-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f417/6390983/612e8c96bc08/ijotm-9-053-g001.jpg

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本文引用的文献

1
Interactions between health care personnel and parents approached for organ and/or tissue donation: influences on parents' adjustment to loss.医护人员与被征求器官和/或组织捐赠意见的父母之间的互动:对父母丧亲调适的影响。
Prog Transplant. 2015 Jun;25(2):124-30. doi: 10.7182/pit2015145.
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Satisfaction with the organ donation process of brain dead donors' families in Korea.韩国脑死亡捐赠者家属对器官捐赠过程的满意度。
Transplant Proc. 2014 Dec;46(10):3253-6. doi: 10.1016/j.transproceed.2014.09.094.
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验证意大利语版的创伤后应激障碍复杂哀伤量表(ICG):一项比较 CG 患者与双相情感障碍、创伤后应激障碍和健康对照组的研究。
Compr Psychiatry. 2014 Jul;55(5):1322-9. doi: 10.1016/j.comppsych.2014.03.001. Epub 2014 Mar 21.
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Family presence during brain death evaluation: a randomized controlled trial*.脑死亡评估期间允许家属在场:一项随机对照试验*。
Crit Care Med. 2014 Apr;42(4):934-42. doi: 10.1097/CCM.0000000000000102.
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The HELLP concept - relatives of deceased donors need the Help Earlier in parallel with Loss of a Loved Person.HELLP理念——已故捐赠者的亲属在失去亲人的同时需要更早得到帮助。
Ann Transplant. 2012 Apr-Jun;17(2):18-28. doi: 10.12659/aot.883219.
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History of solid organ transplantation and organ donation.实体器官移植与器官捐赠的历史。
Crit Care Clin. 2009 Jan;25(1):165-84, ix. doi: 10.1016/j.ccc.2008.12.001.
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Comparative study of depression and consent among brain death families in donor and nondonor groups from March 2001 to December 2002 in Tehran.2001年3月至2002年12月在德黑兰对捐赠者组和非捐赠者组脑死亡家庭中的抑郁状况及同意情况进行的对比研究。
Transplant Proc. 2008 Dec;40(10):3299-302. doi: 10.1016/j.transproceed.2008.08.136.
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Grief and acceptance as opposite sides of the same coin: setting a research agenda to study peaceful acceptance of loss.悲伤与接纳是同一枚硬币的正反两面:设定一项研究议程以探究对丧失的平和接纳。
Br J Psychiatry. 2008 Dec;193(6):435-7. doi: 10.1192/bjp.bp.108.053157.
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The instability of organ donation decisions by next-of-kin and factors that predict it.亲属做出的器官捐赠决定的不稳定性及其预测因素。
Am J Transplant. 2008 Dec;8(12):2661-7. doi: 10.1111/j.1600-6143.2008.02429.x. Epub 2008 Oct 6.