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使用和影响的阿尔茨海默氏症的经验:一个免费的在线媒体制作,以提高公众的认识,并提高知识和理解痴呆症。

Use and impact of the Alzheimer Experience: a free online media production to raise public awareness and enhance knowledge and understanding of dementia.

机构信息

Department on Aging, Netherlands Institute of Mental Health and Addiction (Trimbos-institute), Utrecht, The Netherlands.

Department of Clinical, Neuro & Developmental Psychology, Section Clinical Psychology, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.

出版信息

Aging Ment Health. 2020 Jun;24(6):985-992. doi: 10.1080/13607863.2019.1579781. Epub 2019 Mar 5.

Abstract

This study aims to evaluate an online media production called 'the Alzheimer Experience' (AlzExp), which was developed to raise public awareness and enhance knowledge and understanding of dementia. Before and after watching AlzExp, all visitors of AlzExp (February-June 2012) were asked to complete questionnaires on demographics, knowledge about dementia, attitude towards people with dementia (person-centeredness) and the use of AlzExp. McNemar's chi-squared test, multivariate linear regression analysis and paired t-tests were used to analyze change in knowledge, predictors for change in person-centered attitude and differences between subgroups in change in person-centered attitude. Participants in this study ( = 213) were mostly professionals and working with people with dementia, or had someone with dementia among their acquaintances. An increase of person-centered attitude between pre- and posttest was predicted by age, having a professional or personal relationship with someone with dementia, person-centeredness at pre-test and time spent in AlzExp. Professionals had a more person-centered attitude after watching AlzExp, as did younger people, those who spent more time in AlzExp and those who had a lower score at pre-test. The beneficial impact of AlzExp found in this study was modest and in particular present for people who deal with people with dementia (professionally or personally). More insight is needed in the effects of tools aimed at raising public awareness and enhancing knowledge and understanding of dementia to tackle stigmatization associated with dementia and, thereby, improving the quality of life of people with dementia and their caregivers.

摘要

本研究旨在评估一个名为“阿尔茨海默体验”(AlzExp)的在线媒体制作,该制作旨在提高公众意识,增强对痴呆症的知识和理解。在观看 AlzExp 之前和之后,所有 AlzExp 的访问者(2012 年 2 月至 6 月)都被要求完成关于人口统计学、对痴呆症的了解、对痴呆症患者的态度(以患者为中心)和对 AlzExp 的使用的问卷。使用 McNemar 的卡方检验、多变量线性回归分析和配对 t 检验来分析知识的变化、预测以患者为中心的态度变化的因素以及以患者为中心的态度变化的亚组之间的差异。本研究的参与者(n=213)主要是与痴呆症患者一起工作的专业人员,或在熟人中有患有痴呆症的人。在预测试和后测试之间,以患者为中心的态度的增加可以通过年龄、与痴呆症患者有专业或个人关系、以患者为中心的态度在预测试中的表现以及在 AlzExp 中花费的时间来预测。观看 AlzExp 后,专业人员和年轻人、在 AlzExp 中花费更多时间的人以及预测试得分较低的人,他们的以患者为中心的态度更加强烈。本研究发现 AlzExp 产生了适度的有益影响,特别是对于那些与痴呆症患者打交道的人(专业或个人)。需要更多地了解旨在提高公众意识和增强对痴呆症的知识和理解的工具的效果,以解决与痴呆症相关的污名化问题,从而提高痴呆症患者及其护理人员的生活质量。

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