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减少巴西社区卫生工作者中与痴呆症相关的耻辱感和歧视:一项随机对照可行性试验方案

Reducing dementia-related stigma and discrimination among community health workers in Brazil: protocol for a randomised controlled feasibility trial.

作者信息

Oliveira Déborah, Godoy Carolina, da Mata Fabiana A F, Mateus Elaine, Franzon Ana Carolina Arruda, Farina Nicolas, Evans-Lacko Sara, Ferri Cleusa P

机构信息

Department of Psychiatry, School of Medicine, Universidade Federal de São Paulo, Sao Paulo, Brazil

Department of Psychiatry, School of Medicine, Universidade Federal de São Paulo, Sao Paulo, Brazil.

出版信息

BMJ Open. 2022 Jul 19;12(7):e060033. doi: 10.1136/bmjopen-2021-060033.

DOI:10.1136/bmjopen-2021-060033
PMID:38687683
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9301803/
Abstract

INTRODUCTION

Stigma and discrimination among healthcare workers can hinder diagnosis and the provision of appropriate care in dementia. This study is aimed at developing, delivering and evaluating the feasibility of a group antistigma intervention to improve knowledge, attitudes and behaviours in relation to people living with dementia among community health workers (CHWs).

METHODS AND ANALYSIS

This will be a randomised controlled feasibility trial conducted with 150 CHWs from 14 primary care units (PCUs) in São Paulo, Brazil. PCUs will be randomly allocated (1:1) in two parallel groups-experimental group or control group. Participants from PCUs allocated to the experimental group will receive a 3-day group intervention involving audio-visual and printed materials as well as elements of social contact. The control group will keep their usual routine. Knowledge, attitude and intended behaviour stigma-based outcomes will be assessed at baseline and at follow-up (30 days after intervention) to both groups, with additional questions on feasibility for the experimental group at follow-up. Around 10-15 participants will take part in follow-up semistructured interviews to further explore feasibility. Quantitative analyses will follow an 'intention to treat' approach. Qualitative data will be analysed using content analysis.

ETHICS AND DISSEMINATION

This study was approved by the National Commission for Ethics in Research in Brazil (n. 5.510.113). Every participant will sign a consent form. Results will be disseminated through academic journals and events related to dementia. The intervention materials will be made available online.

摘要

引言

医护人员中的耻辱感和歧视可能会妨碍痴呆症的诊断和适当护理的提供。本研究旨在开发、实施和评估一项群体反耻辱干预措施的可行性,以提高社区卫生工作者(CHW)对痴呆症患者的知识、态度和行为。

方法与分析

这将是一项随机对照可行性试验,对来自巴西圣保罗14个初级保健单位(PCU)的150名CHW进行。PCU将被随机分配(1:1)到两个平行组——实验组或对照组。分配到实验组的PCU的参与者将接受为期3天的群体干预,包括视听和印刷材料以及社交接触元素。对照组将保持其常规状态。对两组在基线和随访时(干预后30天)评估基于耻辱感的知识、态度和预期行为结果,对实验组在随访时还会有关于可行性的额外问题。约10 - 15名参与者将参加随访半结构化访谈以进一步探索可行性。定量分析将采用“意向性分析”方法。定性数据将使用内容分析法进行分析。

伦理与传播

本研究已获得巴西国家研究伦理委员会批准(编号5.510.113)。每位参与者将签署一份知情同意书。研究结果将通过学术期刊和与痴呆症相关的活动进行传播。干预材料将在网上提供。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab77/9301803/68413547f5d4/bmjopen-2021-060033f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab77/9301803/428c47f2f4e7/bmjopen-2021-060033f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab77/9301803/68413547f5d4/bmjopen-2021-060033f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab77/9301803/428c47f2f4e7/bmjopen-2021-060033f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab77/9301803/68413547f5d4/bmjopen-2021-060033f02.jpg

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Ageing Soc. 2023 Feb;43(2):447-468. doi: 10.1017/s0144686x21000660. Epub 2021 May 20.
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Suicide risk in first year after dementia diagnosis in older adults.老年人痴呆诊断后第一年的自杀风险。
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拉丁美洲从事老年护理工作的卫生专业人员对痴呆症的了解程度
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