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谁内化了礼貌污名,又是如何内化的?一项针对以色列阿拉伯痴呆症患者家庭照顾者的研究。

Who internalizes courtesy stigma and how? A study among Israeli Arab family caregivers of persons with dementia.

机构信息

Department of Community Mental Health, University of Haifa, Haifa, Israel.

出版信息

Aging Ment Health. 2020 Jul;24(7):1153-1160. doi: 10.1080/13607863.2019.1584790. Epub 2019 Mar 5.

Abstract

The expected rise in the number of persons with dementia is accompanied by an increasing interest in understanding and reducing the stigmatic beliefs experienced by family caregivers of persons with the disease. While researchers have recently distinguished between family caregivers' perceptions of public stereotypes (i.e., courtesy stigma) and the internalization of these perceptions (i.e., affiliate stigma), no study has yet assessed the characteristics of dementia caregivers who internalize courtesy stigma and how they do so. The aim of this study was to examine the characteristics of family caregivers of persons with dementia who internalize courtesy stigma, and to investigate this internalization process. Structured face-to-face interviews were conducted with 175 Israeli Arab family caregivers (87.4% female; 71.4% adult children; mean age = 54.28) for persons with Alzheimer's disease.: Overall, half of the participants reported experiencing affiliate stigma as a result of taking care of a relative with dementia. Regression analyses showed that lower educational level, increased courtesy stigma and lower levels of social support were the main predictors of affiliate stigma. Social support partially mediated the association between courtesy and affiliate stigma.: Our findings provide important insights for the conceptual understanding and the development of interventions to reduce stigma among family caregivers of persons with dementia.

摘要

预期痴呆症患者人数的增加伴随着对理解和减少患者家属所经历的污名化信念的兴趣的增加。虽然研究人员最近区分了家庭照顾者对公众刻板印象的看法(即礼貌污名)和对这些看法的内化(即附属污名),但还没有研究评估内化礼貌污名的痴呆症照顾者的特征以及他们是如何内化的。本研究旨在探讨内化礼貌污名的痴呆症患者家属照顾者的特征,并研究这一内化过程。对 175 名以色列阿拉伯家庭照顾者(87.4%为女性;71.4%为成年子女;平均年龄=54.28)进行了面对面的结构化访谈,这些照顾者照顾的是患有阿尔茨海默病的人。总体而言,一半的参与者表示由于照顾患有痴呆症的亲属而感到附属污名。回归分析显示,教育水平较低、礼貌污名增加和社会支持水平较低是附属污名的主要预测因素。社会支持部分中介了礼貌和附属污名之间的关系。我们的研究结果为理解和制定干预措施以减少痴呆症患者家属的污名提供了重要的见解。

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