Department of Social Work and Social Administration, University of Hong Kong, Hong Kong.
Mental Health Center, West China Hospital, Sichuan University, Chengdu, Sichuan, China.
Int J Soc Psychiatry. 2023 Jun;69(4):1024-1032. doi: 10.1177/00207640231152206. Epub 2023 Jan 28.
Although stigma and caregiving burden are important in relation to mental health recovery, few studies have been conducted on affiliate stigma and caregiving burden among family caregivers of persons with schizophrenia (FCPWS) in rural China.
This study aimed to examine the severity level of affiliate stigma and caregiving burden, and identify the correlates among FCPWS in rural China.
A mental health survey was conducted ( = 253 FCPWS) in Xinjin county, Sichuan province, China. Affiliate Self-Stigma Scale and Zarit Burden Interview Short Form were used. The regression analysis was performed to explore the correlates of stigma and burden.
Most FCPWS reported experiencing high and severe level of affiliate stigma (78.66%) and caregiving burden (95.26%). Family caregivers who were middle aged, unemployed, with high caregiving burden and low quality of life (QoL), showed more severe affiliate stigma. Family caregivers who were female, older, with low income, high affiliate stigma and low QoL, experienced greater caregiving burden.
The large majority of FCPWS in rural China experienced severe affiliate stigma, caregiving burden and poor QoL. It is crucial to develop culture-specific anti-stigma interventions to reduce caregivers' stigma and caregiving burden, and improve QoL. Specific risk factors of family caregivers' affiliate stigma and caregiving burden should be considered for development of health policy and community-based mental health services.
尽管污名化和照顾负担与心理健康康复有关,但在中国农村地区,针对精神分裂症患者家属照顾者(FCPWS)的附属污名化和照顾负担的研究很少。
本研究旨在调查中国农村 FCPWS 的附属污名化和照顾负担的严重程度,并确定其相关因素。
在中国四川省新津县进行了一项心理健康调查(共 253 名 FCPWS)。使用附属自我污名量表和 Zarit 负担访谈简短版。进行回归分析以探讨污名和负担的相关因素。
大多数 FCPWS 报告经历了高度和严重的附属污名化(78.66%)和照顾负担(95.26%)。中年、失业、照顾负担重、生活质量低的照顾者表现出更严重的附属污名化。女性、年龄较大、收入较低、附属污名化和生活质量较低的照顾者经历了更大的照顾负担。
中国农村地区的大多数 FCPWS 经历了严重的附属污名化、照顾负担和较差的生活质量。制定针对特定文化的反污名干预措施,以减轻照顾者的污名化和照顾负担,提高生活质量至关重要。应考虑照顾者附属污名化和照顾负担的特定风险因素,以制定卫生政策和社区心理健康服务。