DuBay Derek A, Ivankova Nataliya V, Herbey Ivan, Redden David T, Holt Cheryl, Siminoff Laura, Fouad Mona N, Morinelli Thomas A, Martin Michelle Y
1 Department of Surgery, College of Medicine, Medical University of South Carolina, Charleston, SC, USA.
2 Department of Health Services Administration, School of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.
Prog Transplant. 2019 Jun;29(2):164-172. doi: 10.1177/1526924819835837. Epub 2019 Mar 7.
Studies demonstrate that family notification is much less frequent in African Americans than in Caucasians. Familial notification of one's decision to become a registered organ donor (ROD) is important to ensure adherence to the decedent's donation decision and to disseminate prodonation attitudes. The purpose of this study was to explore the experiences of familial notification among recent African American RODs and to identify intervention strategies to overcome potential barriers to the notification process.
METHODS/APPROACH: The study used a qualitative focus group approach. An inductive thematic analysis identified common categories and themes in the recorded and transcribed discussions.
The focus groups consisted of 50 African American participants who had recently visited Alabama Department of Motorized Vehicles and made the voluntary decision (yes or no) about becoming an organ donor. Three major themes describing the African American experiences with notifying their family members about their decision to become a ROD emerged. These themes were as follows: motivation for the notification, notification conversation, and promoting familial notification. Specific discussions centered upon the importance of and barriers to familial notification, information, and strategies needed for successful notification. Strategies identified were use of media and social networks to provide enhanced knowledge on the notification process and the importance of health-care, community-provided knowledge about the donation process.
Findings from this study provide a framework for future interventions designed to assist African American RODs in notifying family members of their status.
研究表明，非裔美国人中家庭告知的频率远低于白种人。告知家人自己决定成为注册器官捐赠者（ROD）对于确保遵守死者的捐赠决定以及传播支持捐赠的态度非常重要。本研究的目的是探讨近期成为ROD的非裔美国人在家庭告知方面的经历，并确定克服告知过程中潜在障碍的干预策略。
方法/途径：本研究采用定性焦点小组方法。归纳主题分析确定了记录和转录讨论中的常见类别和主题。
焦点小组由50名最近去过阿拉巴马州机动车部并就成为器官捐赠者做出自愿决定（是或否）的非裔美国人参与者组成。出现了三个描述非裔美国人告知家人自己决定成为ROD的经历的主要主题。这些主题如下：告知的动机、告知对话以及促进家庭告知。具体讨论集中在家庭告知的重要性和障碍、成功告知所需的信息和策略。确定的策略包括利用媒体和社交网络来增强对告知过程的了解以及医疗保健、社区提供的关于捐赠过程的知识的重要性。
本研究的结果为未来旨在帮助非裔美国ROD告知家人其身份的干预措施提供了一个框架。
