Pini Simon, Hugh-Jones Siobhan, Shearsmith Leanne, Gardner Peter
Patient Centred Outcomes Research Group, St. James's Hospital, Leeds, West Yorkshire, England, United Kingdom.
The School of Psychology, The University of Leeds, Leeds, West Yorkshire, England, United Kingdom.
Eur J Oncol Nurs. 2019 Apr;39:28-34. doi: 10.1016/j.ejon.2018.12.010. Epub 2018 Dec 24.
Young people (YP) returning to school after a cancer diagnosis and treatment have to decide who has the right to know about their cancer experiences and how to distribute this information to peers. Young people face unique challenges in this area because of their life stage, their need to reintegrate with peers, and their own approach to their disease and treatment. This paper explores the perspectives of young people as they return to school during and after curative cancer treatment.
12 young people (6 females, 6 males) from the north of England (aged 13-16 years at time of recruitment) took part in photo elicitation interviews conducted at three time points during the year following a diagnosis of lymphoma, Hodgkin's lymphoma, osteosarcoma, A-plastic anaemia or acute lymphoblastic leukaemia. Interviews were transcribed and analysed using Interpretative Phenomenological Analysis (IPA).
Three main themes emerged: 'approaches to telling', 'lives becoming public property'; and 'owning the story'. Within these themes participants experienced stressors related to altered peer group dynamics, being propelled into the foreground of the school environment, being responsible for the feelings and needs of others, and conflicts between their perception of coping and the reactions of others.
Re-entering school following a diagnosis of cancer can result in challenging dynamics for a young person, which they are not always equipped to manage. Participants displayed individual differences in their approaches and preferences, but inevitably all had to cope with their lives becoming public property and managing the narrative of their cancer experience.
癌症诊断和治疗后重返校园的年轻人必须决定谁有权了解他们的癌症经历，以及如何向同龄人传播这些信息。由于他们所处的人生阶段、与同龄人重新融入的需求以及他们对自身疾病和治疗的态度，年轻人在这一领域面临着独特的挑战。本文探讨了年轻人在根治性癌症治疗期间及之后重返校园时的观点。
12名来自英格兰北部的年轻人（6名女性，6名男性）（招募时年龄在13 - 16岁）在被诊断为淋巴瘤、霍奇金淋巴瘤、骨肉瘤、再生障碍性贫血或急性淋巴细胞白血病后的一年中，于三个时间点参加了照片引发式访谈。访谈内容经转录后，采用解释现象学分析（IPA）进行分析。
出现了三个主要主题：“告知方式”、“生活成为公共财产”；以及“拥有故事”。在这些主题中，参与者经历了与同伴群体动态变化、被推到学校环境的前台、对他人的感受和需求负责以及他们的应对认知与他人反应之间的冲突相关的压力源。
癌症诊断后重返学校可能会给年轻人带来具有挑战性的动态变化，而他们并不总是有能力应对。参与者在方式和偏好上表现出个体差异，但不可避免地都要应对自己的生活成为公共财产以及管理自己癌症经历的叙述。
