Zelano Johan, Klecki Judith, Christensen Jakob, Tomson Torbjörn, Malmgren Kristina
Department of Clinical Neuroscience Institute of Neuroscience and Physiology Sahlgrenska Academy University of Gothenburg Gothenburg Sweden.
Department of Neurology Sahlgrenska University Hospital Gothenburg Sweden.
Epilepsia Open. 2019 Feb 15;4(1):144-152. doi: 10.1002/epi4.12306. eCollection 2019 Mar.
To assess the resources available in the provision of epilepsy care across Europe and the developments since the International League Against Epilepsy (ILAE) survey published in 2003 (data collected in 2000).
An updated online version of the European Epilepsy Services Inventory was distributed to all European chapters of the ILAE (N = 47) and responses were obtained from 33 chapters (response rate 70%). To assess trends and allow comparisons with the survey published in 2003, the responding countries were divided into 4 groups (Western, Central, Southern, and Eastern). Responses from European Union (EU) member states are reported as a subgroup (N = 23), since the current survey is a part of the EU-funded European Study on the Burden and Care of Epilepsy (ESBACE, www.esbace.eu).
The total number of physicians involved in epilepsy care had increased since 2000, with the largest increase seen for neurologists. The gap between the best- and the least-provided areas with regard to the competence of the providers had diminished. However, the density of comprehensive multidisciplinary epilepsy teams had not changed to any greater degree. The main problems reported by the chapters were to a large extent the same as in 2000 and included lack of specialists and specialist care, lack or underuse of epilepsy surgery, and problems regarding financing and resource allocation. Several chapters also highlighted problems with healthcare structure and organization.
Although there have been some improvements concerning the availability of care for people with epilepsy in Europe over the last 17 years, there are still a number of problem areas with little improvement or where there are important regional differences.
评估欧洲提供癫痫护理的可用资源，以及自2003年国际抗癫痫联盟（ILAE）调查（2000年收集的数据）发布以来的发展情况。
向ILAE的所有欧洲分会（N = 47）分发了欧洲癫痫服务清单的更新在线版本，并从33个分会获得了回复（回复率70%）。为了评估趋势并与2003年发布的调查进行比较，将回复国家分为4组（西部、中部、南部和东部）。欧盟成员国的回复作为一个亚组报告（N = 23），因为本次调查是欧盟资助的欧洲癫痫负担与护理研究（ESBACE，www.esbace.eu）的一部分。
自2000年以来，参与癫痫护理的医生总数有所增加，其中神经科医生增加最多。在提供者能力方面，提供最好和最差的地区之间的差距有所缩小。然而，综合多学科癫痫团队的密度没有太大变化。各分会报告的主要问题在很大程度上与2000年相同，包括缺乏专科医生和专科护理、癫痫手术缺乏或使用不足，以及融资和资源分配方面的问题。几个分会还强调了医疗保健结构和组织方面的问题。
尽管在过去17年中，欧洲在癫痫患者护理的可及性方面有所改善，但仍有一些问题领域改善甚微或存在重要的地区差异。
