Vives-Rodriguez Ana, Trujillo Diaz Daniel, Louis Elan D
Division of Movement Disorders, Department of Neurology, Yale School of Medicine, Yale University, New Haven, CT, United States.
Center for Neuroepidemiology and Clinical Neurological Research, Yale School of Medicine, Yale University, New Haven, CT, United States.
Front Neurol. 2019 Mar 5;10:182. doi: 10.3389/fneur.2019.00182. eCollection 2019.
We (1) report whether a companion (i.e., spouse, relative, aide) accompanied our consecutive outpatients with a range of movement disorders, (2) identified the set of patient characteristics that was associated with the need for a visit companion, and (3) characterized the role(s) of these companions during the visit. Our overarching goals were to further understand patient needs and the extent of their support networks, and to enrich the clinician-patient interface. Two-hundred consecutive patients were enrolled from the Movement Disorders Clinic at Yale School of Medicine. We noted whether patients were accompanied by another person during the visit and documented the role of the visit companion during the encounter. One-hundred-twenty-eight of 200 patients (64.0%) brought a companion, with these being spouses (44.8%), adult children (24.1%) or an aide, nurse or social worker (14.5%). Patients who were unemployed (odds ratio [OR] = 5.32, = 0.019), had a diagnosis of Parkinson's disease or other Parkinsonian syndromes (OR = 10.61, = 0.001), or were dependent in any instrumental activities of daily living (iADLs) (OR = 4.99, = 0.005) or basic activities of daily living (bADLs) (OR = 5.81, = 0.02), had increased odds of presenting to the clinical visit with a visit companion. Visit companions' main roles involved communication (86.7%) and transportation (84.4%). Visit companions were commonly present during movement disorders outpatient visits-two-thirds of patients were accompanied. A number of factors increased the odds of requiring such a companion by 4- or 5-fold.
我们（1）报告在我们连续诊治的一系列运动障碍门诊患者中，是否有陪伴者（即配偶、亲属、助手）陪同；（2）确定与需要陪伴就诊相关的患者特征集；（3）描述这些陪伴者在就诊期间的作用。我们的总体目标是进一步了解患者需求及其支持网络的范围，并丰富医患互动。从耶鲁大学医学院运动障碍诊所连续招募了200名患者。我们记录了患者就诊期间是否有他人陪同，并记录了陪伴者在就诊过程中的作用。200名患者中有128名（64.0%）有陪伴者，其中配偶占44.8%，成年子女占24.1%，助手、护士或社会工作者占14.5%。失业患者（比值比[OR]=5.32，P=0.019）、被诊断患有帕金森病或其他帕金森综合征的患者（OR=10.61，P=0.001）、在任何日常生活工具性活动（iADLs）中存在依赖的患者（OR=4.99，P=0.005）或在日常生活基本活动（bADLs）中存在依赖的患者（OR=5.81，P=0.02），有陪伴者陪同就诊的几率增加。陪伴者的主要作用包括沟通（86.7%）和交通（84.4%）。在运动障碍门诊就诊期间，陪伴者很常见——三分之二的患者有陪伴。一些因素使需要陪伴者的几率增加了4至5倍。
