Dev World Bioeth. 2019 Dec;19(4):215-223. doi: 10.1111/dewb.12222. Epub 2019 Mar 19.
This paper examines the ethical issues that arise when healthcare providers act as gatekeepers to research involving vulnerable populations. Traumatised refugees serve as an example of this subset of research participants. Highlighting the particular vulnerabilities of this group, we argue that specific ethical considerations are required that go beyond the conventional research approaches. While gatekeeping responds to some of those vulnerabilities, it risks wronging through unwarranted paternalism. Instead, we will propose that a relational ethics of justice and care serves as a more appropriate framework for responding to the challenges of research involving traumatised refugees. Specifically, such a framework allows us to reflect more deeply on the role of the gatekeeper. In conclusion, we recommend that clinicians and researchers collaborate with survivors' advisory groups in the development of specific research ethical guidelines.
本文探讨了医疗保健提供者作为涉及弱势群体研究的把关人时所引发的伦理问题。创伤难民就是这一研究参与者子集的例子。本文强调了这一群体的特殊脆弱性,认为需要超越传统的研究方法来考虑特定的伦理问题。虽然把关可以应对其中一些脆弱性,但它有可能因为不必要的家长式作风而犯错。相反,我们将提出正义和关怀的关系伦理作为应对创伤难民研究挑战的更合适框架。具体来说,这样的框架使我们能够更深入地反思把关人的角色。总之,我们建议临床医生和研究人员与幸存者咨询小组合作,制定具体的研究伦理准则。