1 Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, NC, USA.
2 Department of Pathology, Wake Forest School of Medicine, Winston-Salem, NC, USA.
J Cutan Med Surg. 2019 Jul/Aug;23(4):388-390. doi: 10.1177/1203475419839965. Epub 2019 Mar 22.
Hidradenitis suppurativa (HS) is a debilitating dermatologic condition presenting with recurrent abscesses. While there are multiple scales to determine HS severity, none are designed for self-administration. A validated severity self-assessment tool may facilitate survey research and improve communication by allowing patients to objectively report their HS severity between clinic visits.
The purpose of this study was to assess a self-administered HS measure.
An HS self-assessment tool (HSSA) with 10 photographs of different Hurley stages was developed. The tool was administered to patients diagnosed with HS who visited the Wake Forest Baptist Health dermatology clinic over a span of 2 months. Physician-administered Hurley stage was recorded to determine criterion validity. To assess test-retest reliability of the measure, patients completed the HSSA again at least 30 minutes after the first completion.
Twenty-four patients completed the measure, and 20 of these patients completed it twice. Agreement between physician-determined Hurley stage and self-determined Hurley stage was 66.7% with a weighted kappa of 0.57 (95% confidence interval [CI]: 0.30-0.84). The weighted kappa for agreement between patients' initial and second completion of the HSSA was 0.81 (95% CI: 0.64-0.99).
The self-administered measure provides moderate agreement with physician-determined Hurley stage and good test-retest reliability.
化脓性汗腺炎（HS）是一种使人衰弱的皮肤病，表现为反复脓肿。虽然有多种量表来确定 HS 的严重程度，但没有一种是专为自我管理设计的。经过验证的严重程度自我评估工具可以通过允许患者在就诊之间客观地报告其 HS 严重程度来促进调查研究并改善沟通。
本研究旨在评估一种自我管理的 HS 措施。
开发了一种带有 10 张不同 Hurley 阶段照片的 HS 自我评估工具（HSSA）。该工具在 2 个月的时间内对在维克森林浸信会健康皮肤科诊所就诊的诊断为 HS 的患者进行了管理。记录了医生管理的 Hurley 阶段以确定标准效度。为了评估该措施的重测信度，患者在第一次完成后至少 30 分钟后再次完成 HSSA。
24 名患者完成了该措施，其中 20 名患者完成了两次。医生确定的 Hurley 阶段与自我确定的 Hurley 阶段之间的一致性为 66.7%，加权 kappa 值为 0.57（95%置信区间[CI]：0.30-0.84）。患者首次和第二次完成 HSSA 之间的加权 kappa 值为 0.81（95% CI：0.64-0.99）。
自我管理的措施与医生确定的 Hurley 阶段具有中度一致性，并且具有良好的重测信度。
