Centre for Transplantation and Renal Research, Westmead Institute for Medical Research, University of Sydney, Sydney, New South Wales, Australia.
Faculty of Medicine and Health Sciences, Keele University, Keele, UK.
Kidney Int. 2019 Apr;95(4S):S1-S33. doi: 10.1016/j.kint.2018.12.005.
The global nephrology community recognizes the need for a cohesive strategy to address the growing problem of end-stage kidney disease (ESKD). In March 2018, the International Society of Nephrology hosted a summit on integrated ESKD care, including 92 individuals from around the globe with diverse expertise and professional backgrounds. The attendees were from 41 countries, including 16 participants from 11 low- and lower-middle-income countries. The purpose was to develop a strategic plan to improve worldwide access to integrated ESKD care, by identifying and prioritizing key activities across 8 themes: (i) estimates of ESKD burden and treatment coverage, (ii) advocacy, (iii) education and training/workforce, (iv) financing/funding models, (v) ethics, (vi) dialysis, (vii) transplantation, and (viii) conservative care. Action plans with prioritized lists of goals, activities, and key deliverables, and an overarching performance framework were developed for each theme. Examples of these key deliverables include improved data availability, integration of core registry measures and analysis to inform development of health care policy; a framework for advocacy; improved and continued stakeholder engagement; improved workforce training; equitable, efficient, and cost-effective funding models; greater understanding and greater application of ethical principles in practice and policy; definition and application of standards for safe and sustainable dialysis treatment and a set of measurable quality parameters; and integration of dialysis, transplantation, and comprehensive conservative care as ESKD treatment options within the context of overall health priorities. Intended users of the action plans include clinicians, patients and their families, scientists, industry partners, government decision makers, and advocacy organizations. Implementation of this integrated and comprehensive plan is intended to improve quality and access to care and thereby reduce serious health-related suffering of adults and children affected by ESKD worldwide.
全球肾脏病学界认识到,需要制定一个协调一致的策略来应对日益严重的终末期肾病(ESKD)问题。2018 年 3 月,国际肾脏病学会主办了一次关于综合 ESKD 护理的峰会,来自全球的 92 名专家参加了会议,他们来自不同的国家,拥有不同的专业知识和背景。与会者来自 41 个国家,其中 16 人来自 11 个低收入和中低收入国家。会议的目的是制定一项战略计划,通过确定和优先考虑 8 个主题下的关键活动,来改善全球获得综合 ESKD 护理的机会:(i)ESKD 负担和治疗覆盖的估计,(ii)宣传,(iii)教育和培训/劳动力,(iv)融资/资金模式,(v)伦理,(vi)透析,(vii)移植,和(viii)保守治疗。为每个主题制定了行动计划,其中列出了优先目标、活动和关键交付成果,并制定了一个总体绩效框架。这些关键交付成果的例子包括改善数据可用性、整合核心登记措施和分析以告知医疗保健政策的制定;倡导框架;加强和持续的利益攸关方参与;提高劳动力培训;公平、高效和具有成本效益的资金模式;更好地理解和在实践和政策中更广泛地应用伦理原则;定义和应用安全和可持续透析治疗的标准以及一套可衡量的质量参数;以及将透析、移植和综合保守治疗作为 ESKD 治疗选择纳入整体健康优先事项的范围内。行动计划的预期使用者包括临床医生、患者及其家属、科学家、行业合作伙伴、政府决策者和宣传组织。实施这一综合全面的计划旨在提高护理质量和可及性,从而减少全球受 ESKD 影响的成年人和儿童的严重健康相关痛苦。