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在规范冷冻胚胎储存时排除本土生物伦理问题:新西兰的一个案例研究

Excluding indigenous bioethical concerns when regulating frozen embryo storage: An Aotearoa New Zealand case study.

作者信息

Fitzgerald Ruth P, Legge Michael, Rewi Poia, Robinson Ella J

机构信息

Social Anthropology Programme, School of Social Sciences, University of Otago, Dunedin, New Zealand.

Department of Biochemistry, University of Otago, Dunedin, New Zealand.

出版信息

Reprod Biomed Soc Online. 2019 Feb 14;8:10-22. doi: 10.1016/j.rbms.2019.01.001. eCollection 2019 Jun.

DOI:10.1016/j.rbms.2019.01.001
PMID:30906887
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6411506/
Abstract

This article undertakes a close reading of the parliamentary debates associated with the topic of embryo cryopreservation in Aotearoa New Zealand. From our critical readings, we argue that there is a lack of transparency over the ethical reasons for enforcing a maximum storage limit. We demonstrate that arguments for the retention of this limit are associated (in New Zealand) with arguments based upon 'build-up avoidance' and 'conflict avoidance' as social goods based on Pākehā [New Zealander of European descent] cultural world views rather than identifiable universal ethical principles. We illustrate that the avoidance of embryo accumulation and related conflict was only achieved by the denial of indigenous spiritual and cultural concerns, while also shifting the ethical burdens of disposition on to clinic staff and those members of the public who protested against enforced cryopreserved embryo disposal. The Pākehā cultural concept of 'tidy housekeeping' emerges as a presumed ethical and social good in the New Zealand situation. This is despite abundant literature documenting the suffering created through forced decision-making upon disposition.

摘要

本文对新西兰与胚胎冷冻保存主题相关的议会辩论进行了仔细研读。通过批判性阅读,我们认为在执行最大存储期限的伦理原因方面缺乏透明度。我们证明,保留这一期限的论据(在新西兰)与基于“避免累积”和“避免冲突”的论据相关联,这些论据是基于欧洲裔新西兰人的文化世界观将其作为社会福祉,而非基于可识别的普遍伦理原则。我们表明,避免胚胎累积及相关冲突只是通过否认本土的精神和文化关切来实现的,同时还将处置的伦理负担转嫁给了诊所工作人员以及那些抗议强制处置冷冻胚胎的公众成员。在新西兰的情形中,“整洁家政”这一欧洲裔新西兰人的文化概念被视为一种假定的伦理和社会福祉。尽管有大量文献记载了因处置方面的强制决策而造成的痛苦。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/af1d/6411506/fc5782dfa01f/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/af1d/6411506/fc5782dfa01f/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/af1d/6411506/fc5782dfa01f/gr1.jpg

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本文引用的文献

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Frozen in perpetuity: 'abandoned embryos' in Canada.永远被冷冻:加拿大的“被遗弃胚胎”
Reprod Biomed Soc Online. 2016 May 12;1(2):104-112. doi: 10.1016/j.rbms.2016.04.002. eCollection 2015 Dec.
2
Connecting the East and the West, the Local and the Universal: The Methodological Elements of a Transcultural Approach to Bioethics.连接东方与西方、本土与全球:生物伦理学跨文化方法的方法论要素。
Kennedy Inst Ethics J. 2016;26(3):219-247. doi: 10.1353/ken.2016.0023.
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'Social' egg freezing and the UK's statutory storage time limits.
“社交性”卵子冷冻与英国的法定储存期限
J Med Ethics. 2016 Nov;42(11):738-741. doi: 10.1136/medethics-2016-103704. Epub 2016 Aug 23.
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Infertility and outcomes for infertile women in Otago and Southland.奥塔哥和南地地区不孕女性的不孕症及治疗结果
N Z Med J. 2015 Nov 20;128(1425):43-53.
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The voices of the embryo donors.胚胎捐献者的声音。
Trends Mol Med. 2015 Feb;21(2):55-7. doi: 10.1016/j.molmed.2014.11.007.
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To freeze or not to freeze embryos: clarity, confusion and conflict.
Hum Fertil (Camb). 2015 Jun;18(2):113-20. doi: 10.3109/14647273.2014.998726. Epub 2015 Feb 7.
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A qualitative and quantitative analysis of the New Zealand media portrayal of Down syndrome.对新西兰媒体对唐氏综合征报道的定性与定量分析。
Disabil Health J. 2014 Apr;7(2):242-50. doi: 10.1016/j.dhjo.2013.11.006. Epub 2013 Dec 12.
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Patients' attitudes towards the surplus frozen embryos in China.中国人对剩余冷冻胚胎的态度。
Biomed Res Int. 2013;2013:934567. doi: 10.1155/2013/934567. Epub 2012 Dec 26.
9
When biological scientists become health-care workers: emotional labour in embryology.当生物科学家成为医疗工作者:胚胎学中的情感劳动。
Hum Reprod. 2013 May;28(5):1289-96. doi: 10.1093/humrep/det051. Epub 2013 Mar 18.
10
"So, what is an embryo?" A comparative study of the views of those asked to donate embryos for hESC research in the UK and Switzerland.那么,什么是胚胎?对英国和瑞士被要求为人类胚胎干细胞研究捐赠胚胎者观点的比较研究。
New Genet Soc. 2008 Jun;27(2):113-126. doi: 10.1080/14636770802077041. Epub 2008 Aug 24.